The Defiant Mind

The Defiant Mind: Living Inside a Stroke | Ron Smith

@bookishkris - I've noticed you haven't posted in a couple weeks. Just want you to know I am thinking about you and hoping that you are doing well recovering from your stroke. It is a long journey and I am sending you love and strength ❤❤❤

bookishkai Thank you. I'm home from rehab and am now doing outpatient PT and OT as well as the merry-go-round of visits with assorted doctors. I'm adjusting to my new normal (for now); today I got up at 7 and it took me until 10 am to perform 5 tasks, which in my previous reality would have taken me 45 minutes. But I also purposely moved my thumb today, so. Baby steps. My PT reminded me yesterday that I'm 27 days out from the stroke, so I'm really new. (edited) 7y

StaceyKondla @bookishkris I am so glad you are home! I am 6 months out from my stroke and still feel the post stroke fatigue. Celebrate all your little successes and stay positive and get lots of rest so your brain can heal 7y

kspenmoll Sending healing love & energy to you both. ❤️💙💚 @bookishkris @StaceyKondla (edited) 7y

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Libby1 I agree with @kspenmoll . Sending love to you both, @StaceyKondla and @bookishkris . ❤️ 7y

bookishkai Do you mind if I ask how old you are and what kind of stroke you had? Mine was a left basal ganglia stroke; I'm 40, young but not that young based on what I've been reading. My leg is expected to recover fully, but they don't know about my arm. And yes, I get that fatigue. I'm pretty useless after 3 pm unless I have a nap! 7y

StaceyKondla @bookishkris -I am 46 and my stroke was left brain due to carotid dissection. During my stroke I was paralyzed on the right side of my body, suffered acute global aphasia and Horner's Syndrome in my left eye. I have fully recovered from all physical deficits, but continue to deal with some cognitive difficulties, headache and extreme fatigue. I am so happy to be alive and have become an advocate for Stroke Awareness because it can happen to anyone 7y

bookishkai @StaceyKondla I can't imagine how frustrating and scary the global aphasia was. I have some expressive aphasia, but only when I'm tired (today is a tired day). And I still feel like I slur a lot of words, but everyone says I don't. 7y

StaceyKondla @bookishkris The global aphasia was the most surreal thing ever. I couldn't speak, couldn't remember my daughters names and was so confused - I could understand some of what people were saying to me but the confusion was overwhelming. I'm glad my language came back very fast. I still grasp for words occasionally, but I'm the only one that notices and my reading speed is not as fast, but has been improving. Remember to not be hard on yourself. 7y

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StaceyKondla

The Defiant Mind: Living Inside a Stroke | Ron Smith

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This is a well written memoir on stroke and recovery. If you've ever wondered what having a stroke feels like, Ron Smith has captured that feeling in this book. Personally, I can't relate to the recovery he has described because his stroke caused physical deficits, while mine are more cognitive, but the journey is fascinating and his strength is inspirational. I would highly recommend this book to the families and friends of stroke survivors.

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