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Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability
Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability | Christie Cox
1 post | 1 read
How to Deal - and Heal - for those with Rare Chronic Illness like EDSTired of being told there's no name or treatment for your illness? That it's all in your head or that your pain can't be real because you're too young/old/pretty/bright/healthy/normal to have a chronic disorder?What if instead there was someone who knew what you were going through and could teach you strategies for coping with rare chronic illness?This is not a false hope. You can turn pain into possibility with this life-changing book that can help everyone with elusive hypermobile Ehlers Danlos Syndrome (hEDS) - from those newly diagnosed to those who have suffered in silence for decades. Wherever you are on your journey navigating the complexities of chronic illness, you're not alone.In Holding It All Together When You're Hypermobile, Christie Cox explores not only the physical effects of hEDS but its emotional impact as well. As a fellow patient and medical rarity, known to doctors as zebras, she's experienced her body's betrayal and suffered through the myriad complications stemming from this disease. But she's also found a way out from the depths of this life-altering disorder with wisdom you can turn into hope.As a self-advocacy guide, she offers practical, no-nonsense advice about living with chronic illness and the concrete steps you can take to achieve a new normal. In her book, you'll discover...A healing prescription for the miracle of the modern mindsetA look at the latest scientific research on the edge of answersQ&A interviews with expert doctors and advocacy groupsGuidance for how to help loved ones better understand hEDSChristie's own inspiring story of how she came to live her best lifeLessons, questions and quotes to inspire your search for answersHolding It All Together When You're Hypermobile gives you the tools and resources you need to get back to living the life you want. Reading it will not only boost your confidence but empower you to change your life for the better.To learn more about Christie's book, visit www.holdingitalltogether.comIf you want to learn more about Christie's advocacy work, visit www.journey2joyous.com
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PuddleJumper
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Mehso-so

This book has a lot of good information. It does a great job of offering support and advice for something that can be quite othering.

Some of it was very specific to the US and their healthcare system. I would just skip those chapters and focus on the ones that could be helpful.

#HauntedShelf #Flerken