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Dementia Reimagined
Dementia Reimagined: Building a Life of Joy and Dignity from Beginning to End | Tia Powell
2 posts | 2 read | 1 to read
The cultural and medical history of dementia and Alzheimer's disease by a leading psychiatrist and bioethicist who urges us to turn our focus from cure to care. Despite being a physician and a bioethicist, Tia Powell wasn't prepared to address the challenges she faced when her grandmother, and then her mother, were diagnosed with dementia--not to mention confronting the hard truth that her own odds aren't great. In the U.S., 10,000 baby boomers turn 65 every day; by the time a person reaches 85, their chances of having dementia approach 50 percent. And the truth is, there is no cure, and none coming soon, despite the perpetual promises by pharmaceutical companies that they are just one more expensive study away from a pill. Dr. Powell's goal is to move the conversation away from an exclusive focus on cure to a genuine appreciation of care--what we can do for those who have dementia, and how to keep life meaningful and even joyful. Reimagining Dementia is a moving combination of medicine and memoir, peeling back the untold history of dementia, from the story of Solomon Fuller, a black doctor whose research at the turn of the twentieth century anticipated important aspects of what we know about dementia today, to what has been gained and lost with the recent bonanza of funding for Alzheimer's at the expense of other forms of the disease. In demystifying dementia, Dr. Powell helps us understand it with clearer eyes, from the point of view of both physician and caregiver. Ultimately, she wants us all to know that dementia is not only about loss--it's also about the preservation of dignity and hope.
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JenniferEgnor
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I have been trying to read as much as I can about neurological conditions such as Alzheimer‘s and Dementia. Volunteering in Hospice, and working a for few months in home health has taught me a lot. My father and step-mom both have Alzheimer‘s, so these books are very helpful but it‘s still hard. This book discusses some history of mental illness and its institutions, and stories of loved ones who have had these diseases. It discusses the⬇️

JenniferEgnor problems with funding, visibility and compassion. It also discusses the ongoing search for a cure. The author lays out her own plans should this happen to her, as it did her mother. Unfortunately, as of now, there is no medically assisted death available for Alzheimer‘s and Dementia, given the requirements the diseases fail to meet along timelines and cognition. For me, that is what I would want; just to check out and call it a night, by any⬇️ 9mo
JenniferEgnor means within my availability. I don‘t want to exist as a shell, the real me being lost forever. If you are looking for a book about caregiving, this isn‘t it, though it is educational and worth reading. Shown: my husband and I with my father and step-mom, last weekend. She told me her grandmother was 200 years old; she gave the cat human cereal with milk in a bowl instead of her cat food; and we saw banana peels that my father placed inside⬇️ (edited) 9mo
JenniferEgnor the storm door frame. You don‘t know what the next moments might bring; you just have to go with it and love them through it. 9mo
TieDyeDude ❤ It is great that you work in home health, but it must be tough having to “bring your work home,“ for lack of a better term. I'm glad you were able to get something out of this book. 9mo
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Krose1
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I heard an interview with the author and wanted to learn more about how to respectfully care for loved ones with Dementia-we are always trying to do the best for my grandmother who has it. Unfortunately, it seemed like most of this book was about the history of it and how expensive it is to decline in the US. I did appreciate the last 2-3 chapters, which were more focused on caregiving and a “good” death. I just wish there had been the main focus.