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Shut Up about Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Children
Shut Up about Your Perfect Kid: A Survival Guide for Ordinary Parents of Special Children | Gina Gallagher, Patricia Konjoian
2 posts | 1 read | 3 to read
AUTHORS' DISCLAIMER: We are not in any way experts on parenting children with disabilities. Our goal is simply to share strategies that have worked for each of us in the event it may help those in a similar situation. If you're different from us (i.e., you are bright or of the perfect persuasion), we advise you not to try the following at home. On a "perfection-preoccupied planet," sisters Gina and Patty dare to speak up about the frustrations, sadness, and stigmas they face as parents of children with disabilities (one with Asperger's syndrome, the other with bipolar disorder). This refreshingly frank book, which will alternately make you want to tear your hair out and laugh your head off, should be required reading for parents of disabled children. Shut Up About Your Perfect Kid provides wise and funny advice about how to: - Find a support group--either online or in your community - Ensure that your child gets the right in-school support - Deal with people--be they friends, family members, or strangers--who say or do insensitive things to you or your child - Find fun, safe, and inclusive extracurricular activities for your child - Battle your own grief and seek professional help if you need it - Keep the rest of the family intact in moments of crisis
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j.rye
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I am usually not a soapbox kind of person. But everyone should read this book. Whether you have a child with special needs or not, you will laugh and cry, and hopefully understand. Sometimes having a child with a hidden disability makes me feel so alone... and judged... and crazy. But this book actually makes me feel normal for once. If I could buy a million copies and hand them out on the street, I would.

Shut Up About Your Perfect Kid!

mandarchy I just added it to my TBR list. My son has a hidden disability that is basically unmentionable. I constantly hear that he's spoiled and lazy. If people new the underlying reason, they'd maybe treat him better. But I want to protect his privacy. So I often ask people if they would treat him better if they could see it in his face, why do they need proof that he deserves better? It's hard. 3y
j.rye @mandarchy it‘s pretty similar here. Ducky is obviously adorable and looks ‘normal.‘ But he had ASD and unique challenges. I hate explaining it to people because why the f should I have to? Just stop staring, Karen! 3y
mandarchy Sometimes I laugh and sometimes I cry. My son growls at people when he thinks they are out of line. He says there is a monster inside him (his obsession is Godzilla). I work hard to #endthestigma but it's tough. I just hope my son grows confident in who he is so he can withstand the states as he gets older. 3y
j.rye @mandarchy I wish I could growl at people who were out of line too 🤷🏻‍♀️ he‘s just brave enough to do what we all want to do. 3y
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j.rye
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I got what I hope ends up being a funny and insightful book at the library today. I need it. With everything still in limbo from covid, my little guy with autism is really struggling and so am I. 😒 I also got a heart cactus just because it was cute. I shouldn‘t be allowed in a greenhouse unsupervised.