Huh. I actually liked it better this time! Still not a full 4 stars (because when I rate a book I always compare it to other books I have rated similarly ?) but enough over 3 stars that it's a "pick" and not a "so-so". Interesting circumstances, both with a rare real-life disease which is quite peculiar on its own, and then gets more so with strange occurrences. There is some romance but it's steeped in strangeness and tension so it's not sappy.