Home Feed
Home
Search
Search
Add Review, Blurb, Quote
Add
Activity
Activity
Profile
Profile
Disability Pride
Disability Pride: Dispatches from a Post-ADA World | Ben Mattlin
1 post
An eye-opening portrait of the diverse disability community as it is today, and how disability attitudes, activism, and representation have evolved since the passage of the Americans with Disabilities Act (ADA) In Disability Pride, disabled journalist Ben Mattlin weaves together interviews and reportage to introduce a cavalcade of individuals, ideas, and events in engaging, fast-paced prose. He traces the generation that came of age after the ADA reshaped America, and how it is influencing the future. He documents how autistic self-advocacy and the neurodiversity movement upended views of those whose brains work differently. He lifts the veil on a thriving disability culturefrom social media to high fashion, Hollywood to Broadwayshowing how the politics of beauty for those with marginalized body types and facial features is sparking widespread change. He also explores the movements shortcomings, particularly the erasure of nonwhite and LGBTQIA+ people that helped give rise to Disability Justice. He delves into systemic ableism in health care, the right-to-die movement, institutionalization, and the scourge of subminimum-wage labor that some call legalized slavery. And he finds glimmers of hope in how disabled people never give up their fight for parity and fair play. Beautifully written, without anger or pity, Disability Pride is a revealing account of an often misunderstood movement and identity, an inclusive reexamination of societys treatment of those it deems different.
Amazon Indiebound Barnes and Noble WorldCat Goodreads LibraryThing
blurb
ncsufoxes
post image

July is disability pride month. Disability rights are civil rights. All policy is disability policy. The disability community is one of the most disenfranchised groups in access to voting (many places are not ADA compliant & disabled people are essentially denied their right to vote). Many decisions/laws/polices about the lives of disabled people are made without input from disabled people. Right now the disability community is terrified. The

ncsufoxes bill that just passed in the Senate will endanger the lives of many disabled people. Not to mention many people that receive assistance may be forced to move back home due to lack of Medicaid coverage. I will always be loud & vocal as an advocate for the disability community. Please keep calling your reps. 2d
IriDas I just got a text from Planned Parenthood about the damned idiots in DC voting to defund them. I hope Cali (my state) keeps them funded. CHLA trashed the trans youth program because they are a bunch of lily-livered cowards. PP was where we hoped to get my daughter‘s medication. They help so many poor people get medication and healthcare, but I suppose that‘s the problem, right? Our rulers only want to help the rich & “abled.” 2d
CBee Thank you for posting this. I haven‘t gotten into the details of the bill yet, as I don‘t know if I could handle it today. But, as the parent of an autistic child and well, just as a HUMAN BEING, I am terrified. 2d
See All 15 Comments
ChaoticMissAdventures @CBee it's impossible to keep up. Especially with things like the vot-a-roma yesterday where the parliamentarian started the day lining out a bunch of things then the Senate spent all day voting on amendments reshaping things. It goes to the house now so time to call those reps. if you are able 2d
dabbe I did not “like“ this for the horrors that this administration is wreaking on people who are suffering in any way, but I liked it because you shared this information with us and are passionate as an advocate for the disability community. Thank you. ✊🏻💙✊🏻 2d
CBee @ChaoticMissAdventures I emailed them. But I might still try to fit in a call! I‘m in Alabama so it‘s discouraging as most republican reps and senators tow the party line (in this case the MAGA line 😔). But I will give it my best! 2d
TheBookgeekFrau So much of the fraud occurs with the insurance companies and the medicare/medicaid back plans they are in charge of. That's what this should've addressed rather than cutting funds. If anyone's interested, there's a great substack called Health Care un-covered that'll make your blood boil. 2d
Deblovestoread Thank you for speaking up. 💙 2d
ncsufoxes @IriDas ableism is so ingrained in our society, it‘s beyond frustrating. I‘m sorry to hear what you‘re going through. It‘s such a mess that will reverberate for years to come. Not having equal access to services is so unreal to me. Peoples misconceptions & misperceptions about what people need or their access to services are something that most politicians just don‘t understand. People are making decisions based on biases not accurate info. 2d
ncsufoxes @CBee Autistic mom here too. It‘s been a lot to process & sort through. I feel like I really only understand a small portion of what was in the bill. I know the big parts about Medicaid & Snap, which will devastate so many people. I used to work in early intervention & I‘ve seen what so many people experience. It breaks my heart to know how many people will suffer just to give rich people tax breaks. And AL, ugh sorry is all I can say. 2d
ncsufoxes @TheBookgeekFrau unfortunately yes too many insurance companies commit fraud & either go unnoticed or get a slap on the wrist. I‘ve worked for agencies that did questionable billing. I‘ve worked with people that were found out later to be billing for services they did not provide. It‘s a mess. Unfortunately the govt does not focus enough or have enough manpower to investigate every claim. There needs to be better audits & systems to catch fraud 2d
TheBookgeekFrau @ncsufoxes God would I love to pick your brain for a few hours! 😂 I used to work in a doctor's office and would fight like hell for our patients to get the coverage we knew they had. I loved my job until insurance became ridiculous and ruined many patient relationships. And the weasel ways of getting out of paying claims made my blood boil! 2d
CBee @ncsufoxes yep, I am quite the outlier here. We use the state funded insurance program for our kids, not Medicaid, but over the years I‘ve met so many kiddos and parents who do need it or else they don‘t get services. Not to mention all of the folks who use it because of chronic illness, not being able to work, etc. I didn‘t get into all of it but Medicaid and SNAP are just huge for me. I emailed my reps but, they typically don‘t listen 😔 2d
kspenmoll ThAnk you for all you are doing- it‘s HUGE!❤️ 2d
29 likes15 comments