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Lightning Flowers
Lightning Flowers: My Journey to Uncover the Cost of Saving a Life | Katherine E. Standefer
3 posts | 3 read | 5 to read
Lightning Flowers weighs the impact modern medical technology has had on the author's life against the social and environmental costs inevitably incurred by the mining that makes such innovation possible utterly spectacular. (Rachel Louise Snyder, author of No Visible Bruises) What if a lifesaving medical device causes loss of life along its supply chain? That's the question Katherine E. Standefer finds herself asking one night after being suddenly shocked by her implanted cardiac defibrillator. In this gripping, intimate memoir about health, illness, and the invisible reverberating effects of our medical system, Standefer recounts the astonishing true story of the rare diagnosis that upended her rugged life in the mountains of Wyoming and sent her tumbling into a fraught maze of cardiology units, dramatic surgeries, and slow, painful recoveries. As her life increasingly comes to revolve around the internal defibrillator freshly wired into her heart, she becomes consumed with questions about the supply chain that allows such an ostensibly miraculous device to exist. So she sets out to trace its materials back to their roots. From the sterile labs of a medical device manufacturer in southern California to the tantalum and tin mines seized by armed groups in the Democratic Republic of the Congo to a nickel and cobalt mine carved out of endemic Madagascar jungle, Lightning Flowers takes us on a global reckoning with the social and environmental costs of a technology that promises to be lifesaving but is, in fact, much more complicated. Deeply personal and sharply reported, Lightning Flowers takes a hard look at technological mythos, healthcare, and our cultural relationship to medical technology, raising important questions about our obligations to one another, and the cost of saving one life.
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Cinfhen
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This was such a heartfelt memoir with a strong moral component. At only 22 Katie discovers she has a rare genetic disorder (Long QT Syndrome) that affects her heart. Left untreated it can result in early death. So begins Katie‘s medical journey. But what makes this memoir so unique is that Katie examines how the technology that‘s meant to keep her alive may be harming many others. She traces the path of manufacturing such a device.👇🏽

Cinfhen Works for #Madagascar #ReadingAfrica22 in case anyone is interested 2y
rabbitprincess That sounds really interesting! Adding it to the list. 2y
Cinfhen I hope you enjoy it @rabbitprincess 2y
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Crazeedi
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A big thank you to @Megabooks for recommending this book. The author tells her story, in compelling prose, of her life before and after being diagnosed with long QT and having an implanted cardiac defibrillator (ICD) put in her body. I well know her story, trying to make decisions without access to information and access to doctors who aren't really there for the patient. I worked on health care for many years, and ⬇️

Crazeedi I know first hand the struggles to get answers, preauthorizations, and wandering the maze of it all. Being retired and disabled has given me even more insight and this book reveals much in specific detail. It's sad that health care has become about procedures and medications instead of about the person. 4y
Crazeedi #20in4 @Andrew65 total reading time-12 hrs, 2 books read 4y
Andrew65 Brilliant 👏👏👏 4y
Megabooks Excellent review, Diane! I‘m glad you enjoyed this. 4y
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Megabooks
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An unexpectedly amazing book. I have always felt thoughtful about my choices regarding my healthcare (surgeries, etc. ⬇️), esp since I have medical training, but Katherine takes it to another level.

She has long QT syndrome, a genetic heart condition that requires beta blockers &/or a defibrillator. It is rare enough that most cardiologists don‘t see often. Because the US healthcare system penalizes for out of network doctors, K‘s care was ⤵️

Megabooks ⤴️ was piecemeal as a young adult. A doctor insisted on implanting a defibrillator in her 20s, which has, at times, caused sepsis, accidental shocks, and misplaced wires in the heart. This is her journey in the healthcare system. She also looks at the role conflict minerals in Africa play in US devices/implants. That part was eye-opening to me regarding the titanium I have in my neck. 4y
Megabooks ⬆️ I had my first spinal fusion when I was 20. Like her, I was desperate to lead a normal life and never thought to ask about alternatives or what was being put in my body. Years later, I learned I had non-fusion options back then - after I had a device fail in my second fusion. (For those counting - I had a third to correct the second.) Now I can‘t look at my lap without severe pain. So I really related to her journey. 4y
Megabooks @Crazeedi this screams you need to read it!! @Cinfhen usual tag, but this is a fantastic audiobook and it would work for Madagascar next year. @BarbaraBB 4y
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BarbaraBB This must be a very good and helpful book for you. 🤍 4y
Megabooks @BarbaraBB thanks! It‘s really been a fantastic reading day for me! 💜 just in case someone needs nonfiction for Madagascar, I think it‘s a great memoir even without medical issues. 4y
Cinfhen I guess I‘ll save it for #ReadingAfrica22 !!! I‘ll start a list today 😁 @BarbaraBB @Librarybelle (edited) 4y
Cinfhen How are you feeling? Still set for tomorrow?? 4y
Megabooks @Cinfhen I have a dermatologist appointment at 9 am that I‘ve been waiting 10 months for, so I‘m going to that then I‘m going to call my doctor‘s nurse and see what she says. I‘m still not able to eat anything but liquids or really soft foods (like puréed soups), but my intestines also feel weird like I have a partial bowel obstruction again. It‘s happened twice before, so I know the signs pretty well. One time they released me after the ER. ⬇️ 4y
Megabooks @Cinfhen the other time I was in the hospital for two days. I‘m used to being in pain so I‘m just trying to distract myself. I‘ve listened to 5 hours of the Mbue this evening. Idk. We‘ll just see what happens. I trust my doctor if I can get through to him. (Sometimes, like when I had a bleeding ulcer, I had to throw a fit to get past the PA.) I‘m just trying not worry too much and handle it tomorrow. Thanks for checking in!! 💜💜💜 4y
Megabooks @Cinfhen I think this would be a good choice for you for Madagascar. It‘s fairly involved there. 4y
Cinfhen It‘s amazing how much your body can go through. You‘re truly a warrior 💪🏽🌻😘hoping you find some comfortable sleep xx of course I‘ll be thinking of you🧡 4y
Cinfhen Also, why is it so hard to get a dermatologist appointment??? It‘s a universal truth!! I had to wait almost a year when I lived in Philly and now here my son also has to wait months😬it‘s the one medical field that seems to be in CONSTANT demand 4y
Megabooks @Cinfhen thank you dear friend!! Each person has their own trials. Mine happen to be medical. I‘m going to try to sleep now. 🤞🏻💕💕 4y
Megabooks @Cinfhen there‘s so much money in cosmetic dermatology that no one wants to practice the regular type. It‘s a HUGELY popular specialty because a cosmetic practice can makes BANK with little on call or emergency. It‘s a super cushy specialty. 4y
Cinfhen YUP!!!!! Gd forbid you have an actual problem like skin cancer 🙄 4y
Megabooks @Cinfhen oh and cosmetic is out of pocket so you don‘t have to pay people to deal with insurance. That‘s a huge hassle gone. And yes, I have a spot my GP can‘t place. I think it‘s benign, but I really want it seen. Dad has had two basal cell carcinomas removed, so you can never be too careful! 4y
Cinfhen Good luck today 💚💚💚 4y
Crazeedi @Megabooks as you know, I had my failed fusion (in 2005) without really knowing other options! Thank you for this rec, I'm going to look for it now!! And I'm so sorry to hear you are suffering, my long distance hug and my prayers are lifted up today. Keep my in the loop Meg. Hope you find out what's going on 4y
Megabooks @Cinfhen thanks! I‘ll send you an email when I know something. 4y
Megabooks @Crazeedi thanks! Us spoonies just have to take it day by day! I hope you enjoy this book if you read it. 4y
Cinfhen 😘If I‘m “absent” it‘s because I have a long day of travel coming up 🙏🏼🙏🏼and who knows if I‘ll get WiFi between flights / I‘ll be thinking of you 🧡 4y
Megabooks @Cinfhen I didn‘t know today was your travel day. Safe travels dear friend!! 😘💕💕 4y
Cinfhen Thanks 🙏🏻 trying to keep it a little quiet 🤐 I‘m still anxious until I‘m actually in the air.... 4y
Crazeedi @Cinfhen safe travels Cindy!!💞 4y
Crazeedi @Cinfhen safe travels Cindy!💞 (litsy is being ornery, this might be posted twice) 4y
Cinfhen Thanks @Crazeedi and YES!! Litsy is not behaving 🙄 4y
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