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Face for Picasso: Coming of Age with Crouzon Syndrome
Face for Picasso: Coming of Age with Crouzon Syndrome | Ariel Henley
1 post | 1 read | 2 to read
I am ugly. There's a mathematical equation to prove it.At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome -- a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. Growing up, Ariel and her sister endured numerous appearance-altering procedures. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Ariel explores beauty and identity in her young-adult memoir about resilience, sisterhood, and the strength it takes to put your life, and yourself, back together time and time again.
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A playlist of all episodes in the Bite-sized Book Chat series: https://youtube.com/playlist?list=PLU-61cZp1pQdBH5V0Zb9q-2ujl4PY8nhf

Chat #1: with Bill from Nairobi

A Face for Picasso: Coming of Age with Crouzon Syndrome by Ariel Henley

Wonder by R.J. Palacio

Disability Visibility: First-Person Stories from the Twenty-first Century by Alice Wong (Editor)

shawnmooney Chat #2: with Chiara from Dublin

Burntcoat by Sarah Hall

Chat #3: with Laura from Illinois

All The Lonely People by Mike Gayle

Chat #4: with Reggie from Española, New Mexico
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Learning to Talk to Plants by Marta Orriols
Mara Fay Lethem (Translator)
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Reggie Thanks, Shawn! This was a lot of fun! 3y
LeahBergen Oh! You got @Reggie ! Well, I‘m going to have to watch now for sure. 😊 3y
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Reggie @CoverToCoverGirl It‘s right here at the top. Hope you enjoy! I‘m the 4th one. 3y
CoverToCoverGirl @Reggie thank you! It was fun listening to you give Mara‘s book such a great review. Well done! 🙂 I agree with Shawn you make an excellent guest. Really engaging to hear you speak. 3y
Reggie @CoverToCoverGirl Thanks so much. Shawn made it easy for me to gush about the book. 3y
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