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#chronicillness
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bookwyrm7
Untitled | Unknown
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My first time cooking a meal after my latest surgery. I've really missed cooking, being in the kitchen, dicing the vegetables, smelling a hot boiling pot, adding the spices, choosing ingredients and combinations... I love it! The result wasn't as tasty as I was hoping but it wasn't bad either. Just the first of many from now on. It's a delight to be able to feed my loved ones again!

#SaturdayChatterday #cooking #chronicillness #disability #food

AllDebooks Oh, I'm so with you on this. I've just done the same, and it's bliss x 3w
23 likes2 comments
review
GirlNamedJesse
Gut Reaction | Kirby Larson, Quinn Wyatt
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Pickpick

As if middle school isn‘t difficult enough, she gets to add in being the new kid, and a new sensation: a knife twisting in her gut that portends needing a bathroom like yesterday. Even if every preteen isn‘t experiencing Crohn‘s there are many other things that they likely don‘t see represented in media that make them feel “weird”. Books like this could give them hope enough to ask for help.

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GingerAntics
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Pickpick

As a woman diagnosed with hEDS in the last 1.5 years, this book is so validating. It also explains so much of my own experiences with medical professionals. The EDS explains so much of my life history. This book is such an important starting point, this should be required reading for any medical professional to be licensed in the 2020s.
👇🏻👇🏻👇🏻

GingerAntics How are women to be treated like human beings with the ability to make decisions for themselves about their lives and their medical treatment socially and culturally, if medical professionals don‘t even take us seriously as human beings? #elinorcleghorn #unwellwomen #chronicillness #sexism #everydaysexism #eds #heds #pain #chronicpain #iamanunwellwoman 4mo
GingerAntics This was quite a lovely companion today as I sat in dealing with low level joint pain and ridiculously dry eyes (I swear, every day I find a new connection between something truly annoying in my life and EDS). 4mo
kspenmoll I am happy you have a diagnosis; sad you are living with its symptoms. I looked it up but sounds like there are many kinds. Do you have a source you think is best? I know we are just litsy friends but i care for you. 🩵 I got Unwell Women from the library. (edited) 4mo
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GingerAntics @kspenmoll honestly, I‘m still wrapping my head around it. Every time I turn around another random thing is tied to it. lol I‘ve taken to just googling the symptom and EDS just to see what pops up. lol There is the Ehlor‘s Danlos Society that‘s pretty good. I haven‘t found any books yet. There are 13 kinds or 16 kinds. It‘s a lot of kinds. I have the hypermobile kind. It‘s the only one without a genetic test. 4mo
GingerAntics @kspenmoll it‘s finally an answer to why I‘ve felt like I was “getting old” since my late teens. It took a physical therapist asking the right questions for me to end up with a diagnosis. Man I love that guy! The book is great! It‘s also kind of sad how women have been completely abandoned and even outright harmed by the medical profession when men took over and started outlawing midwives/women from attending births and caring for each other. 4mo
GingerAntics @kspenmoll like most things, if guys would just keep out of it, or come in asking questions instead of making pronouncements, we would be SO much further along. 4mo
23 likes6 comments
review
LiteraryinPA
Sincerely, Harriet | Sarah Winifred Searle
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Pickpick

What an unusual, nuanced graphic novel. There‘s nothing juvenile or simple about this story. No easy morals or cliches. It‘s a story about a teenager named Harriet whose family has just moved, and how she spends the days while her parents are working multiple jobs. The circumstances are revealed slowly and even at the end there is a lot that isn‘t spelled out. I would recommend this for adults as well as teens. Very thought provoking.

65 likes4 stack adds
blurb
bookwyrm7

I have been sick and not able to read for a few days (or was it weeks?). I hate it. I love reading, being in challenges, writing about books... But I never know when I'm going to get worse or have a flare. It's frustrating... 😔
Any other chronically disabled people in here who sometimes struggle to keep up with their reading and reading challenges?

#disability #chronicillness #chronicdisabililty

Amor4Libros I‘m sorry you are feeling unwell, sending you love! ❤️ 7mo
bookwyrm7 @Amor4Libros thank you 🖤 7mo
Jari-chan Sending strength and love ❤️🫂I hate it when I'm off my reading plan due to sickness. It's so annoying. Often I continue reading even if I feel like 🤮 7mo
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bookwyrm7 @Jari-chan thank you ? I do that too sometimes. I get the "itch" if I don't read anything for too long, so sometimes I just read regardless of the pain. In a way maybe it helps? Unfortunately, that's not always the case. 7mo
Jari-chan @bookwyrm7 I so relate to you. It's just something missing, when I'm not reading. And when I'm not reading because I'm in pain, it somehow makes it even worse. 7mo
bookwyrm7 @Jari-chan exactly! 7mo
4 likes6 comments
review
GirlNamedJesse
Not Quite a Ghost | Anne Ursu
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Pickpick

I adore this book! Sure I had to stop reading because I saw something moving in the hallway, and sure my fear of “someone in the mirror” was reawakened, and sure the description of “not quite a ghost” turned my stomach, but it‘s inspired by The Yellow Wallpaper by Charlotte Perkins Gilman (love it!) and the doctors are enRAGing, and Violet learns to stand up for herself. 👻

review
coffees
One for All: A Novel | Lillie Lainoff
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Pickpick

I remember when the author was doing a ton of PR for this and now there's nothing. It totally needs to be yelled about some more bc it was really good!! A story of the musketeers after the OG Ms have "retired". Tania is the daughter of a musketeer and has longed to be the heroine of her father's stories. The problem? Her mother's worry and her poor health. A story with #disability rep, sisterhood, ⚔️ fights, challenging ourselves, and self-love

4 likes1 stack add
blurb
charl08
With You Forever | Chloe Liese
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I do like this series.

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JoyBlue
Not Quite a Ghost | Anne Ursu
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Mehso-so

The whole book was unpleasant. Throughout, there is the middle-grade version of Mean Girls. Then, in the last roughly twenty percent, there is the ghost story/horror aspect. I didn't find any compelling redeeming features.