Litsy

Just got home from my youngest son‘s Reg‘l Ctr annual appt. The SW usually comes to us, but I thought it would be easier to go there. When we got home, he did not know where we were. Because it was not a normal place he goes, in that 2 hours (incl commute) he had become so disoriented I had to take his hand to lead him. It reminds me that my kids are the people this admin hates. I never have the privilege to be non-political.

#booksarepolitical

lil1inblue 💓 💓 💓 1d

Leftcoastzen Hugs 🫂 to you and yours , such evil BS. 1d

ncsufoxes 💓 , same here. I have 3 neurodiverse kids, 1 of which is Autistic. He‘s a smart kid but I don‘t think he‘ll ever be independent. I have to be political because they have made my kids lives political. When their ability to access services & programs is dependent upon funding or some politician having an ounce of understanding of what my life is like or the hoops that parents have to jump through, you have to be political. It‘s f-n exhausting 1d

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willaful @ncsufoxes I hear you. My adult daughter is autistic and gets a lot of services. Or did. Who knows now. 🤬 1d

TheBookHippie 💙💙💙💙💙💙💙 1d

TheBookHippie Sending you so much love. 1d

IriDas @lil1inblue Thank you. 1d

IriDas @Leftcoastzen It is. And so unnecessary. 1d

IriDas @ncsufoxes I have two autistic and one other with disabilities. It really is exhausting, isn‘t it? Between the politics and how evil the insurance companies are, I really have nothing left most days. 1d

IriDas @willaful That‘s scary. It‘s already hard to get services. I used to think we‘d be safe in California, but CHLA is cowing to the admin over trans issues, what will they do now? Just dump all their Medicaid patients? And Newsom is recommending more cuts to disability services. Gotta keep the rich happy. (edited) 1d

IriDas @CBee Thanks. It‘s all more than a bit too much today. Also, I think I accidentally deleted your comment. I was trying to edit mine and now yours is gone. :( do you mind reposting it? 1d

IriDas @TheBookHippie Thanks. 1d

CBee @IriDas sure! I was just offering solidarity as I also have an autistic child (11). Mentioned if you, @ncsufoxes and @willaful ever wanted to email about experiences I‘d be open and available ♥️ 1d

IriDas @CBee that would be very nice. I do not have really any support, though I do have a few friends at work now who kind of get it. But it‘s not the same as people who know the long haul we are all in for. 24h

AnnCrystal 💝🫂💝. 20h

Amiable It‘s not enough, but sending love and virtual hugs to you and yours. I‘m so sorry our country is repeatedly and so thoroughly failing its most vulnerable citizens. ☹️😖💙 20h

CBee @IriDas my email is cydneybean@gmail.com. Write anytime ♥️ 16h

IriDas @AnnCrystal Thanks 14h

IriDas @Amiable Thanks. 14h

IriDas @CBee Thanks. I shall. 14h

Jess861 Sending you and your family positive vibes. 13h

CBee @IriDas looking forward to it ♥️ 12h

dabbe I am so sorry that you have to fight so hard in this current administration. Holding you and your family in my thoughts. 💙✊💙 9h

IriDas @Jess861 Thanks. 8h

IriDas @dabbe thank you. 8h

21 likes25 comments

ncsufoxes

Disability Pride: Dispatches from a Post-ADA World | Ben Mattlin

July is disability pride month. Disability rights are civil rights. All policy is disability policy. The disability community is one of the most disenfranchised groups in access to voting (many places are not ADA compliant & disabled people are essentially denied their right to vote). Many decisions/laws/polices about the lives of disabled people are made without input from disabled people. Right now the disability community is terrified. The

ncsufoxes bill that just passed in the Senate will endanger the lives of many disabled people. Not to mention many people that receive assistance may be forced to move back home due to lack of Medicaid coverage. I will always be loud & vocal as an advocate for the disability community. Please keep calling your reps. 3d

IriDas I just got a text from Planned Parenthood about the damned idiots in DC voting to defund them. I hope Cali (my state) keeps them funded. CHLA trashed the trans youth program because they are a bunch of lily-livered cowards. PP was where we hoped to get my daughter‘s medication. They help so many poor people get medication and healthcare, but I suppose that‘s the problem, right? Our rulers only want to help the rich & “abled.” 3d

CBee Thank you for posting this. I haven‘t gotten into the details of the bill yet, as I don‘t know if I could handle it today. But, as the parent of an autistic child and well, just as a HUMAN BEING, I am terrified. 3d

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ChaoticMissAdventures @CBee it's impossible to keep up. Especially with things like the vot-a-roma yesterday where the parliamentarian started the day lining out a bunch of things then the Senate spent all day voting on amendments reshaping things. It goes to the house now so time to call those reps. if you are able 3d

dabbe I did not “like“ this for the horrors that this administration is wreaking on people who are suffering in any way, but I liked it because you shared this information with us and are passionate as an advocate for the disability community. Thank you. ✊🏻💙✊🏻 3d

CBee @ChaoticMissAdventures I emailed them. But I might still try to fit in a call! I‘m in Alabama so it‘s discouraging as most republican reps and senators tow the party line (in this case the MAGA line 😔). But I will give it my best! 3d

TheBookgeekFrau So much of the fraud occurs with the insurance companies and the medicare/medicaid back plans they are in charge of. That's what this should've addressed rather than cutting funds. If anyone's interested, there's a great substack called Health Care un-covered that'll make your blood boil. 3d

Deblovestoread Thank you for speaking up. 💙 3d

ncsufoxes @IriDas ableism is so ingrained in our society, it‘s beyond frustrating. I‘m sorry to hear what you‘re going through. It‘s such a mess that will reverberate for years to come. Not having equal access to services is so unreal to me. Peoples misconceptions & misperceptions about what people need or their access to services are something that most politicians just don‘t understand. People are making decisions based on biases not accurate info. 3d

ncsufoxes @CBee Autistic mom here too. It‘s been a lot to process & sort through. I feel like I really only understand a small portion of what was in the bill. I know the big parts about Medicaid & Snap, which will devastate so many people. I used to work in early intervention & I‘ve seen what so many people experience. It breaks my heart to know how many people will suffer just to give rich people tax breaks. And AL, ugh sorry is all I can say. 3d

ncsufoxes @TheBookgeekFrau unfortunately yes too many insurance companies commit fraud & either go unnoticed or get a slap on the wrist. I‘ve worked for agencies that did questionable billing. I‘ve worked with people that were found out later to be billing for services they did not provide. It‘s a mess. Unfortunately the govt does not focus enough or have enough manpower to investigate every claim. There needs to be better audits & systems to catch fraud 3d

TheBookgeekFrau @ncsufoxes God would I love to pick your brain for a few hours! 😂 I used to work in a doctor's office and would fight like hell for our patients to get the coverage we knew they had. I loved my job until insurance became ridiculous and ruined many patient relationships. And the weasel ways of getting out of paying claims made my blood boil! 3d

CBee @ncsufoxes yep, I am quite the outlier here. We use the state funded insurance program for our kids, not Medicaid, but over the years I‘ve met so many kiddos and parents who do need it or else they don‘t get services. Not to mention all of the folks who use it because of chronic illness, not being able to work, etc. I didn‘t get into all of it but Medicaid and SNAP are just huge for me. I emailed my reps but, they typically don‘t listen 😔 3d

kspenmoll ThAnk you for all you are doing- it‘s HUGE!❤️ 3d

ncsufoxes @dabbe @Deblovestoread @kspenmoll 🫶🏻 3d

AnnCrystal
🥺🙏🏼💝. 21h

31 likes16 comments

Catsandbooks

The Future Is Disabled: Prophecies, Love Notes and Mourning Songs | Leah Lakshmi Piepzna-Samarasinha

Reminder for #riseupreads July 2025

Read at your own pace. There will be a discussion posted on Litsy at the end of the month.

Please tag me in your posts & use #riseupreads

If you're not currently tagged & would like to be, let me know.

Content warnings: ableism, grief, pandemic, chronic illness, mental illness, racism, death, medical trauma, sexual assault, rape, suicide

LitsyEvents

Catsandbooks @LaughterHp @melismatic @julsmarshall @skygoddess1 @Bookwormjillk @lil1inblue @Jadams89 @puddlejumper @Liz_M @mrsV @thebookhippie @lapreader @willaful @cuilin 4d

Catsandbooks @peanutnine @singout @mhillis @light_of_aether @alldebooks @kspenmoll @librarybelle @mimi28 @ElizaMarie @AbigailJaneBlog @DebinHawaii @Kristy_K @IriDas @CaseyTheCanadianLesbrarian 4d

Librarybelle My library does not have this one, so I‘ll have to unfortunately set this month‘s out. I‘ll be back next month! 4d

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PuddleJumper My library doesn't have this. I'll sit this month out 4d

IriDas @Librarybelle and @PuddleJumper Your library should be able to get it for you via ILLiad, the internet library loan system. It might take a week, but it would be worth it. 4d

PuddleJumper @IriDas That's not applicable to my library system 4d

Librarybelle @IriDas Thanks for the tip! I‘m a former public librarian and love promoting ILL! This is on my radar for sometime later to read. I‘ll enjoy seeing everyone‘s thoughts on this book. 4d

Eggbeater My library has this on Hoopla. Can you add me, please? 4d

Catsandbooks @Eggbeater added you! 💖🔥 3d

40 likes9 comments

ChaoticMissAdventures

Just by Looking at Him: A Novel | Ryan O'Connell

I am ready for some summer reading!! I have 3 books to finish up for June which has been super grey and gloomy here in PDX. But July is almost here and the sun has agreed to come out!

Pulling all of my summer feeling books ☀️🎉🌈

AmyG Ooooo I love your plants…looks like my house. (edited) 6d

CBee @AmyG @ChaoticMissAdventures mine too! 🪴 6d

ChaoticMissAdventures @AmyG @CBee it was my lockdown hobby 😂.i finally stopped buying them when I realized I had no place to put them and honestly I am a bit tired of caring for all of them! They are so pretty though! 5d

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CBee @ChaoticMissAdventures I, too, got into it during lockdown. Once I discovered I could keep them alive, I was hooked! Just bought three new Hoya starter plants last week 😂😂 5d

ChaoticMissAdventures @CBee currently all my plant money is going to this weirdo patch on my patio where I am trying to grow mint ground cover and the squirrels keep digging it up and taking it. I just put in a huge order for more at the nursery, like a crazy person telling the lady the squirrel will not win this battle 😂 5d

CBee @ChaoticMissAdventures omg squirrels are the worst!! They eat all the bird food I put out!! 5d

34 likes6 comments

Michellesibs

Easy Beauty | Chlo� Cooper Jones

so-so

Parts of this book I really enjoyed. Her birth in Bangkok and her parents personalities I found really interesting. The chapters in Cambodia I was totally absorbed by as the descriptions reminded me of my own trip.

However, on the whole I feel I'm not clever enough for this as I just didn't get the points she was making. The time hopping was distracting and her recounted discussion with her friends were too academic for me to grasp.

34 likes

Soubhiville

Just by Looking at Him: A Novel | Ryan O'Connell

bailed

Well, at about 30% I‘m giving up. I am not finding this particularly funny, and I don‘t really like the main character. I know he‘s supposed to learn about who he is and grow as a person, but I‘m over it.

#hailthebail

Aims42 🌜✨🚀 Onto better reads! 1w

rwmg My problem with it was that it's a very localised humour. If you're not part of a particular milieu most of the jokes are going to land flat, though they are probably screamingly funny if you are. 1w

Crazeedi How are you my friend 1w

Soubhiville @Crazeedi I‘m well! Life is a bit hectic at the moment with a move happening in July, but I‘m looking forward to settling into my home I‘ve been watching be built and been planning for through the last year and a half. How are you? 1w

Crazeedi @Soubhiville I guess I'll need your new address? Send me a note with it!! Hugs 2d

60 likes5 comments

bookishbitch

Noor | Nnedi Okorafor

pick

I really enjoyed this. She really knows how to tell a story, and her worldbuilding is always well done. I loved all of the underlying commentary regarding capitalism, colonization, and climate change. Though it wasn't really hidden at all. I liked this much more than Remote Control, but less than the Binti series. She is now an autobuy author for me.

18 likes

IriDas

The Future Is Disabled: Prophecies, Love Notes and Mourning Songs | Leah Lakshmi Piepzna-Samarasinha

“We die because we don‘t matter in the non-disabled world.”

Note: This book is not easy.

If anyone doesn‘t believe this quote after everything we witnessed since the beginning of COVID, their heads are so deep in the sand they‘ve hit bedrock. I really feel this now that Trump‘s man RFK Jr is destroying the few things that were protecting my daughter and the governor of California is actively cutting services to disabled people.

#disability

AnnCrystal What!! Our Governor Newsom?? What?? No...

🙏🏼💝. 2w

IriDas @AnnCrystal Newsom is a rich man‘s liberal, just like Brown. The needs of the common person are not his main interest. That has been obvious by, among many things, his cuts to education, his horrible “solution” to the teacher crisis, and, most recently, his fawning over the likes of Charlie Kirk. 2w

AnnCrystal @IriDas what!!!! Oh man, I stay as up to date with my politicians as much as I do my favorite celebrities...I have to do better. Especially in this day and age! Thanks, I will do more research. 🙏🐻💝. 1w

21 likes1 stack add3 comments

IriDas

The Future Is Disabled: Prophecies, Love Notes and Mourning Songs | Leah Lakshmi Piepzna-Samarasinha

#weeklyforecast

Back to work this week. The digital book is both audio and ebook, depending on my activity or mood. The physical is to read at work since we are not supposed to be using our phones in the office/classroom due to the nature of our work.

#disability

15 likes

Lauredhel

The Impending Blindness of Billie Scott | Zoe Thorogood

on page 28 :

- Terrible Lettering Hall of Shame award

- That's not how retinal detachment works

- That's not how disability diagnosis works

- That's not how anything works

Impending DNF

49 likes

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