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#spoonie
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obviateit
A Grief Observed | C. S. Lewis
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I‘m very late to #thoughtfulthursday , but I move in #spoonie time 😅. Thank you, @Gezemice for the tag! ❤️
1. I can‘t have candy anymore, but Hubby makes some bangin avocado chocolate pudding and pumpkin seed butter, that taste even better than Reese‘s when combined. 😍
2. The Strangers (2008) *shudder*
3. “No one ever told me that grief felt so like fear.” -C.S. Lewis

8 likes1 stack add
review
IndoorDame
My Not So Perfect Life | Sophie Kinsella
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Pickpick

I was looking for a fun read and this totally fit the bill!

I picked it as my #socialmediafocus read for #booked2019 and as the title suggests it asks what ripple effects come from the image we project online, so it really got me thinking about my own accounts and how comfortable I actually am with transparency online vs in irl interactions.

Cinfhen You‘re killing it!!!! #BookChallengeSlayer 🙌🏻 6y
BarbaraTheBibliophage Great pick and review. I have had those discussions with myself about what I post. When life is tough I hardly say anything, and sometimes that‘s when I should. Be Momma taught me not be a “whiner” so I generally keep quiet. (edited) 6y
IndoorDame @BarbaraTheBibliophage I totally know that feeling! Outside of litsy my only active account is an instagram where I try to post a really transparent account of life with chronic illness. I started partly to connect with others going through the same thing & partly to help raise awareness, but I‘m only actually able to let myself do it so freely cause I‘ve kept it account completely separate from my personal life & my friends/family don‘t follow 6y
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BarbaraTheBibliophage @IndoorDame I did exactly the same thing with a Twitter account when I was 1st diagnosed with RA 10 years ago. It helped to process the experience with people who “got me.” While my friends and family love me, they didn‘t really know how to help. #spoonie #chroniclife 6y
IndoorDame @BarbaraTheBibliophage wow, really? hearing that is actually really comforting! sometimes I do feel odd about keeping it private, but it works for me for now :) 6y
BarbaraTheBibliophage @IndoorDame I‘m glad it‘s a comfort. I think you do whatever works for you! 😘 6y
33 likes6 comments
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elizabethlk
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Recovering spoons with my partner and a funny audiobook. Definitely enjoying so far and recommended for fans of H. Jon Benjamin. #audiobooks #spoonie

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BarbaraTheBibliophage
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Library hold for this just came in ... away I go! I‘m expecting it to be a rough read, since I‘ve been through some intense Lyme treatment myself. I‘ve read the comments about her messy relationships being more prominent than her illness. Hoping i don‘t feel that way...

#nonfiction #memoir #chroniclyme #lymedisease #lymie #spoonie #chronicillness

catiewithac I really enjoyed this book, but I wish she had used this opportunity to provide more education about Lyme‘s Disease. I‘m a RN and I still wouldn‘t understand if someone just responded with “Lyme” in response to health history questions. 6y
BarbaraTheBibliophage @catiewithac Even without reading her book, I can agree with you. Lyme (Not Lyme‘s) is so complicated. If you‘d like to read more, this is my GR shelf with lots of choices. https://www.goodreads.com/review/list/3932962-barbara-the-bibliophage?shelf=lyme... 6y
113 likes3 stack adds2 comments
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Jabberwocky
Annihilation | Jeff VanderMeer
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Blood work is never ending. 😅 #fibro #chronicfatigue #spoonie

AmyG Hope all goes well. 7y
40 likes1 comment
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Jabberwocky
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It has been a crazy Monday. My #chronicpain kept me up all night and work was bananas. Ergo instead of using my evening off to read, I‘m engaging in two of my guilty pleasures. Prison documentaries and kraft dinner. #spoonie

cobwebmoth I hope tomorrow is better! 7y
Carolhreads I love that show too :) prison shows are great. :) 7y
jamie_in_the_library Sad to hear about your day, but that looks like a good way to unwind! My guilty pleasure show is Kitchen Nightmares 🍴☺️ 7y
CouronneDhiver Good to know I‘m not the only one... I love those shows! 7y
49 likes5 comments
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Jabberwocky
The Fate of the Tearling | Erika Johansen
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I‘m on a new #chronicpain medication and it‘s giving me crazy mood swings and taking away what little functionality I have on a day to day basis. I‘ve been snappy and impatient at work and with my partner and dog and I‘m just over it. I‘m hiding out with Georgia for now. #spoonie #rant #dogsoflitsy

LeahBergen I hope you feel better soon ❤️ 7y
Louise I hear you! I too struggle with chronic pain. Finding the right balance for optimum functioning is a huge challenge and requires a fine-tuned knowledge of one's body moment by moment. I hope you start to feel balanced soon! ❤️ What an adorable doggie! 🐾 7y
DHill Hope you feel better soon! 7y
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TaylorMay Sending you lots of love, patience, strength. Glad you have an awesome cuddle buddy 💙 7y
Scurvygirl Lots of love! Fellow spoonie! Always a new med! Take care of yourself and be kind. 💜💜💜 7y
AmyG Hope you are feeling better soon. 7y
cobwebmoth Hope you feel better soon. 7y
readordierachel I'm sorry. Hope you're feeling better soon! 7y
JSW Lots of love. Be patient with yourself. You‘re adjusting. 😘❤️ 7y
Jabberwocky Oh guys thank you so much for the love. I‘ve needed it. 💚 @jsw @ReadOrDieRachel @AmyG @Scurvygirl @TaylorMary @LeahBergen @louise @DHill 7y
RaimeyGallant I'm so sorry to hear that. You deserve treats. :) 7y
48 likes11 comments
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Jabberwocky
Hood: A Novel | Emma Donoghue
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I forgot about a very important doctors appointment yesterday and had a small meltdown. Yay #spoonie problems. Anyway we went book shopping instead and I picked this up. Looks amazing and only 3$! #queerbooks

LiteraryinPA After being underwhelmed by a few post-Room books by this author, I was going to call it quits on her. But this premise sounds really good! 7y
tournevis Argh, I hate it when that happens to me. *Huggles* Also, books good. 7y
Jabberwocky @LiteraryinLititz I haven‘t actually read anything since room but I agree, I‘ve read less than great things about her other books. I‘ll let you know how this one goes 7y
Jabberwocky @tournevis Thank you 💖 The appt was on the 4th at five and I went on the 5th at four. It was frustrating through, they never did a confirmation call. 7y
tournevis @Jaberwocky Hoping you were able to reschedule. And they should have called. 7y
38 likes5 comments
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athorne
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I've wanted this book for quite awhile now. Look who got #spoiled today! My new boyfriend totally tops the last one! #bookhaul

Also I have a #spoonie update. My #ulcerativecolitis is in remission presently! I am off steroids and chemo!

LauraJ Good job, new boyfriend! And good job intestines! May you have spoons to spare 🥄 7y
Reviewsbylola Wow, your boyfriend is amazing! 7y
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athorne @Reviewsbylola Right?! The only thing I directly asked for was the epsom salt. I saw that on the shelf and mentioned I plan to get them someday when I can and he just grabbed them both! 7y
litmuggle What a sweet guy 7y
UglyOldBat Aww nice one. I'm a spoonie too. Seriously cuts into my reading time 😊 7y
60 likes1 stack add6 comments