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Invisible Women
Invisible Women: Exposing Data Bias in a World Designed for Men | Caroline Criado Perez
'Invisible Women takes on the neglected topic of what we don't know - and why. The result is a powerful, important and eye-opening analysis of the gender politics of knowledge and ignorance. With examples from technology to natural disasters, this is an original and timely reminder of why we need women in the leadership of the institutions that shape every aspect of our lives.' Cordelia Fine You've heard all about the Gender Pay Gap... Welcome to the Gender Data Gap Our world is largely built for and by men, in a system that can ignore half the population. This book will tell you how and why this matters In her new book, Invisible Women, award-winning campaigner and writer Caroline Criado Perez shows us how, in a world largely built for and by men, we are systematically ignoring half the population. She exposes the gender data gap a gap in our knowledge that is at the root of perpetual, systemic discrimination against women, and that has created a pervasive but invisible bias with a profound effect on womens lives. Caroline brings together for the first time an impressive range of case studies, stories and new research from across the world that illustrate the hidden ways in which women are excluded from the very building blocks of the world we live in, and the impact this has on their health and wellbeing. From government policy and medical research, to technology, workplaces, urban planning and the media Invisible Women exposes the biased data that excludes women. In making the case for change, this powerful and provocative book will make you see the world anew.
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jenniferw88
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Librarybelle This is on my to read list 2d
squirrelbrain I found this one fascinating when I read it. 2d
Cinfhen Well done 👍🏽 1d
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she_she
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she_she
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she_she
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The_Book_Ninja Truly shocking 🙁 2mo
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she_she
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Emu
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Pickpick

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AnneCecilie
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Alwaysbeenaloverofbooks Thank you for playing 📚🙌🏻 6mo
45 likes1 comment
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JoeMo
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I‘m pretty cynical, but I have to admit I was even surprised and at times angry about how deep bias typically goes with sex and gender in completing research that shapes everything from recommended medical treatments to public policy.

Another great title I‘d like to give a quick pitch for is The Impeachers by Brenda Wineapple about the impeachment of Andrew Johnson.

#alphabetgame #letteri
@Alwaysbeenaloverofbooks

bookandbedandtea I'm about halfway through this book but I've taken a break because it infuriates me. From what I've read so far I think this should be required reading; everyone needs to know how deep this runs. 6mo
JoeMo @bookandbedandtea - I couldn‘t agree more w/ you. It‘s why I chose it as a pick even though I actually enjoyed The Impeachers more. The truth is Invisible Women has more important information that everyone should be aware of 6mo
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keys_on_fire
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June‘s pick was Tell Me S‘more and July‘s pick is Instructions for Dancing. I had to give the edge to Invisible Women for the next round, as the impact it had on me was profound and I‘ve been extolling its virtues to anyone who will listen!
#2022ReadingBracketChallenge @chasjjlee

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jlhammar
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Adventures-of-a-French-Reader Seems interesting, thanks for the recommendation ;) 7mo
Alwaysbeenaloverofbooks Perfect 👍🏻 📚 7mo
KathyWheeler This is an excellent book and more than mildly infuriating. I read parts of it out loud to my husband, and he was infuriated too. 7mo
Eggs Great choice 7mo
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keys_on_fire
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Pickpick

I recommend this book to anyone, and plan to buy one for my workplace library. My sense of fascination compelled me to finish this quickly, and I recommend the audiobook as the narrator makes the stats very digestible. This is something we need to stand up against, and that means more people need to be made aware.
2 Bingos for #bookspinbingo this month, and 12 books read. Yay!!
@TheAromaofBooks

TheAromaofBooks Woohoo!! Fantastic month!! 8mo
Bookwormjillk Invisible Women was so good 8mo
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keys_on_fire
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I started listening to this book while driving to my parents on Friday, and continued listening on my way home today. Ironically, most of what I heard today was about how cars are tested with male dummies and how many more women are severely injured than men because they have to adjust everything just because they are women. Now reading this chapter about medicine is just flooring me.

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ManyWordsLater
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How can anyone have self control when books you‘ve been thinking about are a quarter of their list price is beyond me.

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Conservio
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Riveted_Reader_Melissa That‘s a good one! 10mo
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Conservio
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little haul from the library. i‘ve been itching to go book shopping lately…

The top 2 were impulse check outs (hush to be read bookshelf…), the sentence has been popping up everywhere, and invisible women is for a bookclub i‘m in.

#litsyloveslibrary #bookclub #nonfiction #fiction

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jenniferw88
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Emu
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I‘m reading this in small portions because I get so frustrated - not with the book but with the issues Perez shows. 😊

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ElizaMarie
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Pickpick

So, again @DieAReader, thank you for recommending this one. It enraged me! But made me think a lot about how things are phrased, how we need to adjust for people's bodies, genetic makeup, emotional wellbeing. I feel like there is so much more to learn. So much more making women at risk. - Highly recommend this eye-opener!

#the52bookclub2022 Prompt 7: Nonfiction Best Seller

#DogsOfLitsy

DieAReader Huge 👀opener for me as well. So very glad you enjoyed it (even if at times that meant wanting to scream at the lot of it)♥️♥️ 12mo
ElizaMarie @DieAReader Yes I really did enjoy it.. but yes! Too many times I wanted to scream at it!!! 12mo
DieAReader @ElizaMarie 💯!! I am so glad you enjoyed it!! 12mo
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ElizaMarie
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I am really enjoying this book. Is enjoying the right word? It's so disturbing and infuriating that women aren't considered in so many avenues of life! It's super eye-opening and I didn't realize how I just came to “accept“ the biases that are gender-based. Ugh! Anyway, I would definitely #Reccomend this one. I am about 62% done :)

#BeardiesOfLitsy (My princess, Gizmo)

DieAReader It‘s mind blowing💥 12mo
DieAReader Beautiful Princess Gizmo♥️♥️♥️ 12mo
ElizaMarie @DieAReader I am at the whole medical aspect one. Ugh! And looking back, I am currently taking an Evidence-Based Nursing class, and I have been reading a bunch of peer-reviewed articles and research and most do not differentiate the population of women/men, so .. it's just interesting now that I am starting to realize all these biases. 12mo
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DieAReader @ElizaMarie Wow on the timing, for sure! It put a lot of things into perspective & explain why I‘m treated as I am by one of my doctors. 12mo
ElizaMarie @DieAReader So, I felt like... this time around I was taken seriously on my headaches (and they found narrowing of my vessels, a blood clot, real visible problems, not -- it's all in your mind) ... I feel like years ago when I was a “young dumb girl“ it was all swept under the rug! 12mo
DieAReader @ElizaMarie Being taken seriously is such a huge accomplishment when speaking to anyone in the medical profession, in my experience. I am still that “young dumb girl” (of 25) in the eyes of some. It shouldn‘t be that way for anyone. I am so so happy you‘ve been taken seriously♥️🥰 12mo
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DieAReader
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Pickpick

#JoyousJanuary #WeekendReading #BookNookBuddies2022 #ImpulseRead #BookSpinBingo

5⭐️

Very 👀opening for anyone who doesn‘t think/believe that we still live in a “Man‘s World”🙄🤣 Very enlightening & extremely informative. I loved it!

ElizaMarie I am really enjoying what I have heard so far. I really find it enlightening as well. Especially right now that I am taking an Evidence-Based Research class for my Nurse Practitioner and it's interesting reading the research articles I am reading and how gender-based they are! Never really noticed it before. 12mo
Andrew65 Great 👏👏👏 12mo
TheAromaofBooks Great progress!! 12mo
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ElizaMarie
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As a recommendation from @DieAReader I had to check this out.. and SCORE! it was available to download from Libby (with no wait time!). I am using this as my next #AudioCommute book :)

#DogsOfLitsy

DieAReader It‘s quite eye opening🤯 and so much makes more sense to me now🙃 I hope you like it!! 12mo
ElizaMarie @DieAReader I am excited to check it out. Thanks again for the recommendation 12mo
DieAReader @ElizaMarie Happy to help! 12mo
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DieAReader
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#JoyousJanuary #BookNookBuddies2022

Something to keep me company while doing some tidying up.

Bookwormjillk I liked this one 12mo
DieAReader @Bookwormjillk I can see why😁It‘s got me hooked already! 12mo
CoverToCoverGirl Is it any good? The library has this one. 12mo
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DieAReader @CoverToCoverGirl It is good yes! At 19% already and enjoying it very much😁 12mo
Andrew65 Can‘t beat a good impulse read. 12mo
DieAReader @Andrew65 Agreed♥️ 12mo
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bookandbedandtea
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I'm not so sure I'll be able to finish my #DoubleSpin this month. This book is DENSE! I'm three chapters in and the amount of information is overwhelming. (In addition to frustrating and infuriating.)

Itchyfeetreader I actually threw my kindle when I got to the medical chapter ! I think this is one worth doing a chapter at a time and taking time to reflect on 13mo
bookandbedandtea @Itchyfeetreader I agree with that. I've already decided I'm going to have to slow down to manage my blood pressure while I read this. 😠 13mo
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SilverShanica
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I am posting one book per day from my to-be-read collection. No description and providing no reason for wanting to read it, I just do. Some will be old, some will be new - don‘t judge me I have a lot of books.
Join the fun if you want. This is day 359.
#bookstoread
#tbrpile
#bookstagram

AnneCecilie This one is so great. One of my favorite reads 13mo
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squirrelbrain
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Nothing to do today at Gladstone‘s Library but read….. and eat…. And maybe a nap!

#readingretreat

AnneCecilie That sounds lovely 😊 1y
Chrissyreadit Looks perfect. 1y
Caroline2 Nice!!! 😊 1y
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rockpools I have to ask. How‘s the food? 1y
squirrelbrain It‘s definitely better @rockpools ! Dinner last night was good ; we‘re going to the pub tonight. Nice soup for lunch too and the cakes are yummy (and enormous!) 1y
rockpools @squirrelbrain Oh good! Have a fab time 😊 1y
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Smrloomis
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Pickpick

Overall this was a very eye-opening and infuriating listen. Packed full of examples of how women are not considered the norm and how this negatively impacts us (and everyone really). Very good read. Highly recommend it.

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TrishB
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#kindledailydeal
Some well loved ones today for those who haven‘t yet read them.

squirrelbrain 👍😁 1y
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JenniferP
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Pickpick

A maddening look at how women‘s issues and bodies have been ignored, abused, and unplanned for in societies around the world. Hard to read, but so important to shine a light on.

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CharismaRaven13
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this book is a must-read! I wasn‘t aware of woman‘s (and children‘s) problems of using the bathroom in third world countries can be fatal. And did you know that automobile ratings are completely wrong? This book is full of information that will make your jaw drop. Some were known to me, most were not. Very informative! I highly recommend this book!

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JoeMo
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Pickpick

This was a great audiobook! I loved that the author read her own work. The book outlines how women are often ignored and left out when policy changes are made by governments and companies and in medical trials. This book will leave you dumbfounded in regards to how much women are overlooked in many realms of life. I respected how calm the author‘s writing remained as she could have easily engaged in some deserved male bashing!
#doublespin

TheAromaofBooks Great progress!!! 1y
Michellesibs This book blew my mind! So good. 1y
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SamAnne
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Pickpick

Gilda says what the cluck? This book is infuriating! While the writing and lists of statistics could have been better. It is an important read! Better late than never for #SheSaid

Leftcoastzen So cool!🐓 1y
SamAnne @Leftcoastzen she jumps up into my lap when I read on the deck. It‘s not affection really, just hope that I may have a treat. Which I usually do… 1y
GondorGirl Gilda is absolutely perfect! 🥰 1y
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Reggie I like that Gilda‘s actual look into the camera matches her what the cluck statement. Lol. Awesome post. 1y
Cathythoughts Good heavens ! Good morning Gilda 😁 1y
Riveted_Reader_Melissa Great photo! I love Gilda! 1y
SamAnne @Riveted_Reader_Melissa she certainly makes sure SHE isn't invisible whenever I read on my deck. 😁 😁 😁 1y
Riveted_Reader_Melissa @SamAnne And she has the right idea! Don‘t accept invisibility, make yourself clucking seen. 😉 1y
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Martta
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Pickpick

I learned so much! And I fear the world sooooo much more after reading this. The health care parts in this book can cause sleepless nights on its own. I feel like I need to listen to this again after a year or so when I have processed the first round... 🤦‍♀️ It felt like this book contained so much important info that it takes at least 3-4 listening rounds to comprehend and remember everything.

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kbuggle
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Pickpick

This is a fantastic, data driven, and absolutely infuriating look at gender bias. Made my blood boil for all the very obvious ways women are disregarded on a day to day basis in all things- from healthcare to seatbelts, and iPhones to education, men are considered the default. Sometimes for no other reason that no one has bothered to collect the data on women. So many problems could be solved if we just listened to women.

Hooked_on_books This was so well done. And I agree—infuriating! 😤 1y
she.hearts.horror I found this to be an infuriating yet informative read as well. 1y
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Martta
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This book makes me very nervous. How is it possible that for example medical people HADN'T NOTICED that female and male bodies are different. It feels like I'm losing my faith in the world bit by bit after every listened minute... 🤦‍♀️

Cazxxx It‘s definitely a hard read. It made me furious the further in I got, the fact that everything is designed around men is just awful 1y
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Riveted_Reader_Melissa
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This is a tiny side tangent quote from a book I read with #SheSaid last month….. but this quote is just repeating in the back of my brain as I watch the news this week.

I also keep thinking of one of our first #SheSaid books by Malala Yousafzai Tough week #SheSaid and tough for all the women and girls left behind. 😢

ChaoticMissAdventures I have been thinking about this also as we watch pictures of women being painted over throughout Kabul. It is devastating. 1y
MallenNC The news from Afghanistan is very worrying and scary. I don‘t have the words to be more eloquent about it. 1y
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AnneCecilie
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Pickpick

I first listened to this book last year and knew then I would have to own my own copy and read it again. I‘m so glad #SheSaid had this book as a buddy read so I got to this sooner rather than later.

What I love about this book is that it cover a range field of areas where women is discriminated against and research from a lot of countries. This makes it harder to dismiss the reality.

A must read for everyone

Riveted_Reader_Melissa Great review! I love how you phrased that, that was it exactly! 2y
AnneCecilie This was also my #DoubleSpin for July @TheAromaofBooks 2y
TheAromaofBooks Great progress!! 2y
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MallenNC
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Pickpick

This was my #BookSpin #DoubleSpin and our #SheReads book for August. It was a reread for me, and I was so glad to be able to discuss it with other readers, which I wanted to do the first time. Criado-Perez provides a global picture of the ways in which women are left out of research, politics, and policy decisions — everything from medical research and car safety to governmental representation and rebuilding after natural disasters.

ChasingOm Well, I stacked that faster than maybe anything I‘ve stacked before. 😅 2y
MallenNC @ChasingOm When you read it let me know what you think! 2y
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KathyWheeler
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Pickpick

I don‘t normally read books about statistics; they bore me. This book is anything but boring. It‘s well-written, readable, and anger-inducing. I knew statistics could be skewed, but it never occurred to me that women were deliberately being left out of studies. In medical studies, we‘re often left out because our hormones are too “messy” and might skew the data. You‘d think hormone differences would be essential to know in medicine. 😡 #SheSaid

Riveted_Reader_Melissa It was such a good read, and yes, she put the story behind the statistics and made them so relatable! 2y
KathyWheeler @Riveted_Reader_Melissa I‘ve already recommended this book to several people. 2y
SamAnne I‘m only about halfway through but am glad to have joined this readalong. So mind-opening. 2y
KathyWheeler @SamAnne it really is mind-opening and infuriating. 2y
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Riveted_Reader_Melissa
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Another book finished and this one had a powerful ending… I couldn‘t help but think about the current fight in the US about what‘s really “infrastructure” it felt like she was writing that part specifically for this moment. As a whole I felt like I got a lot out of this book, I hope all of you did too. ⤵️

#SheSaid

Riveted_Reader_Melissa I know, I for one won‘t look at studies and statistics quite the same way again…I already knew they could be twisted to give a slanted view, but this will make me look even deeper at study pools etc. 2y
Riveted_Reader_Melissa @bibliobliss I‘ll just add you here, because for some reason it wouldn‘t let me tag you above 🤷‍♀️ 2y
MallenNC This was a reread for me, so I had a little less shock at some of the content this time around. I still learned a lot and like you, will wonder about research studies from now on. I think the main point for me in this book is how important representation is and why it is important for everyone to go beyond the “default male” when making policy or other decisions. 2y
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staci.reads I think what shocked me the most is simply how unusual it is for studies to collect gender-specific data or disagragate for gender. It seems so obvious that it should be happening that I'm flabbergasted it doesn't. 2y
Riveted_Reader_Melissa @MallenNC I know I also thought…if it‘s this hard to get women considered (which is half the population and literally everyone knows one), what are the blind spots for minority groups (anyone less than half the population)….whether race, ethnicity, indigenous peoples, disability, etc. if it‘s this bad for women, those numbers must be pitiful. 2y
Riveted_Reader_Melissa @staci.reads Right! You‘re collecting the data anyway, why wouldn‘t you code it…and just see if there was a difference along those lines. So bizarre, like they purposefully don‘t want to know. 2y
MallenNC @Riveted_Reader_Melissa That‘s what I kept thinking about too. Really eye opening. 2y
staci.reads I really appreciated in Chapter 14 how she broke down the numbers for the types of bills and issues women are more likely to put forward when they are in positions of power. It frames well the discussion for the needs to have equal representation. "As little as a single percentage point tise in female legislators was found to increase the ratio of educational expenditure" (266). That's so significant! 2y
staci.reads I also appreciated her discussing Hilary's struggles during the campaign because they have become such a road map for future female candidates. That election will end up being one of the most studied and analyzed elections in history. 2y
Riveted_Reader_Melissa @staci.reads Yes…why we should push for equal representation, and not just for women, but for everyone. Have a percentage of the vote on policies be representative of the population over all‘s needs is so important. Again, I thought about that current fight over infrastructure bills. One everyone agrees on, hard infrastructure like roads and bridges, but it had to be separated from soft infrastructure like child care and elder care that there⤵️ 2y
staci.reads And of course the discussion of assertiveness and ambition in men vs. women is always infuriating, but essential to keep acknowledging and educating about. I once had a boss criticize me for having "aggressive body language." Still not quite sure what that means. I had another boss tell me that when I feel strongly about something, I can come on kind of strong. It was not a compliment. 2y
Riveted_Reader_Melissa ↪️ isn‘t majority agreement on. This book made me really see why both are equally important, the different is they just expect women to pick up the slack on the second and not have to invest money in it…that free unpaid women‘s work labor force. 2y
staci.reads I was also really intrigued by the methods some places are using methods to increase proportional representation...especially the zipper method. 2y
Riveted_Reader_Melissa @staci.reads I agree. I‘ve read a few books looking at it know, and I‘m sure it will be more analyzed as people let go of the quick and easy knee jerk reaction that she somehow flubbed it…. she didn‘t. 2y
Riveted_Reader_Melissa @staci.reads Yes, some of those were very interesting. 2y
staci.reads @Riveted_Reader_Melissa for sure! Her discussion of infrastructure was fascinating for me as well - all the way back to the beginning of the book when she was talking about snow removal and public housing. When women aren't at the table, there are huge gaps in planning for a better present and a better future. 2y
Riveted_Reader_Melissa @staci.reads Yes…if a woman stands up for herself at all, she‘s the problem. Even if it‘s just rebuffing catcalling, she‘s the problem. I was told that once in HS. And was flabbergasted, I had asked to have a party for a departing teacher in a certain period (I think it was study hall)….I asked permission (from the male teacher) and let them know I already had permission from the other teacher involved. Basically just providing info.⤵️ (edited) 2y
Riveted_Reader_Melissa ↪️ I mean you have to ask someone first and someone second. But apparently I was twisting his arm by telling him that I‘d cleared it with the other teacher first… so he felt I wasn‘t giving him a choice apparently…I ended up talking to the Principal. To this day, I still don‘t understand it… you ask permission from everyone involved in the order I saw them that day. But, whatever 2y
Riveted_Reader_Melissa @staci.reads It‘s amazing how basic questions and organizing from a woman can be so intimidating. 2y
vlwelser @staci.reads I loved the zipper method. It seems like a reasonable method. 2y
vlwelser How about the guy that thought it wasn't fair about including women and then got in trouble for sending a dead bird to another MP's wife? Clearly he was meant to be there more than a woman. 🤦🏻 2y
vlwelser I liked this book but I was left feeling unfulfilled because it was too broad. But I definitely liked this last few sections this week the best. 2y
Riveted_Reader_Melissa @vlwelser Right! What a winner of a human being! 2y
Riveted_Reader_Melissa @vlwelser It did cover a lot, and yes… someone could write a book on each part probably doing a deeper dive. This one was a good overview though, showing how pervasive the problem is throughout all parts of our lives. I‘m still struck by the housing with no kitchens thing…they assume after a flood everyone would be ordering out 24/7, so bizarre (everyone needs to eat.) 2y
vlwelser Agreed. How do you build a house with no kitchen? It's like forgetting to put in a bathroom. Except I suppose men might so those as important. 2y
vlwelser *see 2y
tenar I‘m echoing everyone‘s thoughts; this really left me with a lot to mull over about study design from top to bottom, from taking data on ‘head of household‘ to what, exactly, is infrastructure to the chromosomes of cells in lab studies! I‘m glad to say I believe it‘s also equipped me to make a harder, more data-driven case for why genuine, diverse representation is important. And, like Melissa said, 2y
tenar that case-making goes for minority groups as well, and I do wish gender and sexual minorities were at least briefly addressed, particularly in highly relevant topics like targeted violence, homelessness, and restrooms. I had a reverse preference on this book, though, where I felt the first half was very strong and the breadth-over-depth aspect started to become apparent toward the end. And still shaking my head about the kitchens. 2y
AnneCecilie This was I reread for me, I listened to it last year, so I remembered a lot of the statistics and wasn‘t as shocked this time. What really struck me is how comprehensive the exclusion of women are in everything and how women are dying from it. 2y
Riveted_Reader_Melissa @AnneCecilie Yes…for me that worked really well. The breadth of the book & problem made it clear it wasn‘t just one area, and made it harder to just brush off as a fluke. 2y
Singout Yes, I didn‘t reread it because the number of stats is more than I could absorb in an audio (and the reader‘s voice isn‘t the best), but I was glad I read it the first time! So much I had never thought of, and, like others have said, so extensive and unnecessary. 2y
AnneCecilie I also like how she uses statistics and research (or lack there of) from all over the world and not just the US or UK. That also brings home the point that this is everywhere and not just a problem a few places. 2y
Riveted_Reader_Melissa @AnneCecilie Yes! I think that helped bring it home for me too, it‘s not just a problem here, it‘s literally everywhere! It‘s pervasive in everything humans touch basically. 2y
27 likes33 comments
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staci.reads
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Pickpick

Another fantastic, thought-provoking book that I probably wouldn't have picked up if not for the #shesaid reading challenge. The author covered a wide array of areas where the female data gap has far-reaching and long-lasting effects. Excellent book! @Riveted_Reader_Melissa

Riveted_Reader_Melissa I agree, this group is picking some great books that I probably never would have gotten to without them. 2y
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AnneCecilie
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in a 2004 Guardian article comedian Sandi Toksvig wrote about how when she was studying anthropology at university one of her female professors held up a photograph of an antler bone with twenty-eight markings on it. ‘This,‘ she said, ‘is alleged to be man‘s first attempt at a calendar.‘ We all looked at the bone in admiration. ‘Tell me,‘ she continued, ‘what man needs to know when 28 days have passed? I suspect that this is woman‘s first attempt

AnneCecilie at a calendar.‘ 2y
Tamra 😆 2y
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ChaoticMissAdventures
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Pickpick

Serene cat looks super depressed by the statistics in this book, and I don't blame her.
While I study feminism it is still disheartening to see such a collection of how the world is underserving and devaluing women.
I do wish that non-binary and Trans people had been mentioned. We know that violence against the Trans community far outstrips any other community so that is a huge data gap missed here.

tenar I have the same thoughts about this one! 2y
31 likes1 comment
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sarahlandis
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Pickpick

This book was so good! It examined the way lack of research and data effect women in the world. Everything from dying more in hospitals, being affected worse by pandemics and natural disasters, roles in governments, to seemingly small things like how kitchens are designed and how snow is plowed. If nothing, it highlights how sexism really is at the root of so many issues. Highly recommend!

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vlwelser
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Pickpick

This was definitely an interesting read. It gives a brief overview of many ways in which women aren't really considered at all, which is absurd since they are about half the population. The last chapters were especially interesting.

#SheSaid with @Riveted_Reader_Melissa
Final discussion on Sunday. Until then 🤐

#BookSpinBingo square 4
@TheAromaofBooks

Riveted_Reader_Melissa Right, it‘s hard to review without giving away too much. Except to tell people to read it. 2y
TheAromaofBooks Great progress!! 2y
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Riveted_Reader_Melissa
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Oh this was a hard part to read! Dealing with a chronic illness my whole life and seeing the gaslighting by doctors being so common, was tough to read, even though I can‘t say it‘s wrong…I wish I could. #SheSaid

tenar Yes, same Melissa! This section was difficult for me and why I put off this book, ‘cause I‘ve lived this bit of it. As a female-presenting teen, I was misdiagnosed by a top US hospital with an eating disorder when I really had a cardio/neurological condition. Even though it‘s sooo easy to test for if you think to do it, it took me years to get a correct diagnosis (by a female GP). Though people with my condition are approximately 90% female, 2y
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tenar male patients experience a shorter time to correct diagnosis. I‘ve been waiting for an explanation for that other than sexism. 🙃 Y‘all won‘t be surprised to hear my female-predominant condition is most often misdiagnosed as anxiety and mistreated with antidepressants, but I digress.

I wanted to share: changes to body armor in US!
https://www.npr.org/2021/07/19/1017774038/female-soldiers-are-excited-about-new-...
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AnneCecilie I totally agree with you. It‘s hard to read about the misdiagnosis of women and that hardly any medication is tested on women. 2y
Riveted_Reader_Melissa Sorry for the spotting tagging, I think I got everyone now. For some reason it would let me tag a few at a time, but not a large group.🤷‍♀️ 2y
Riveted_Reader_Melissa @tenar Yep! Similar… I was a baby, but of course it was my young parents, especially my young teen mother who must be caring for me wrong…neglect basically, officially “failure to thrive”. (edited) 2y
MallenNC The medical chapter was the hardest for me to read (along with the part about seatbelt and car safety in the previous section). It‘s very angering that women patients are ignored, and of course the parts about women being left out of drug testing are frightening. (edited) 2y
Riveted_Reader_Melissa @MallenNC Yes, very scary. I felt the same way. 2y
Riveted_Reader_Melissa @MallenNC Scary, and you know really angering…the seatbelt issue was more plain neglect, it didn‘t occur to them that size makes a difference (stupid, but not purposefully harmful), but for medicine they know…girls hormones are too complicated to test on and mess up our results, which means they know it effects results, but instead of doing anything…just don‘t test on them. It‘s the willful disregarding of different results that I found maddening 2y
MallenNC @Riveted_Reader_Melissa Those are my thoughts on the drug research too. And how many potentially beneficial drugs have been missed because they work best on women? 2y
Riveted_Reader_Melissa And the Viagra thing blew my mind, I‘d heard it before, but as rumor…that a medicine alleviates PMS symptoms, but there‘s no market, but it also helps with ED, we can make money there! 🤯 crazy to me, pain for women (eh), sex for men (yea, that‘s the ticket)! 2y
Riveted_Reader_Melissa @MallenNC And the bedside doctor stuff, ignoring pain and instead deciding it‘s mental…that struck me as more outright gaslighting (not to mention violating their oath of do no harm), then just plain dumb neglect. It was a hard chapter for sure! 2y
MallenNC @Riveted_Reader_Melissa Yes that part about viagra is so maddening. And I agree about doctors “knowing best”. So many people have to fight to be believed and understood when they know their bodies best. 2y
vlwelser I actually read an entire book on this topic. It's amazing that men either don't believe in female problems or just don't care. Like at all. But they aren't trained properly to treat over half the population and that seems a bit insane. Here is the other book (ironically written by a man) 2y
staci.reads I'm freaking out right now because I'm reading how medication to lower blood pressure can increase risk of cardio-related deaths. My mom just had to go to the ER because her heart rate was 188 and blood pressure was sky high. This was right after starting a blood pressure medication for the first time. TWO doctors have told her it couldn't have anything to do with the medication because this one has "no side effects" and to stay on it ? 2y
staci.reads I'm finally getting caught up on the reading and almost done with this section. It's maddening! 2y
tenar @Riveted_Reader_Melissa Ah, that is just so tough. I think being a teenage girl in a (male) doctor‘s office is one of the most vulnerable places you can be. And, y‘know, even my (at the time middle-aged) mom got blamed a few times for my condition before it was accurately diagnosed. I‘m sure it‘s been hard, but I‘m glad you‘re here now.

I don‘t know if you take any medication,
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tenar @Riveted_Reader_Melissa but I was so personally intrigued by the drug testing and standards for generics, especially. I have had some trouble with generics compared to name brands, and I was wondering if that laxity of testing has anything to do with it. Its sometimes hard to justify a higher price when you‘ve just got a feeling a generic‘s causing problems, but assurance it ‘should be fine‘. It‘s definitely got me thinking! 2y
tenar @staci.reads That is so stressful!! Don‘t be afraid to keep asking questions - whether it‘s the medication or something else, y‘all deserve good answers. I wish your mom the absolute best. 2y
Riveted_Reader_Melissa @vlwelser Even though it‘s written by a man, I‘m stacking that one! 2y
Riveted_Reader_Melissa @staci.reads I‘m so sorry! I hope they get it straightened out! The best I can advise is be a strong advocate for her and keep pushing. No matter what a prescription is meant to do there can always be adverse reactions for individuals. 2y
Riveted_Reader_Melissa @tenar I do take medicine, and I‘ve had to have my doctor jump through hoops to get some covered by insurance…and/or to get the name brand approved. They may need to fill out a prior authorization, and mine has to do that and submit it every year. Because the one formula of the medicine I take is more expensive, but it‘s the one that works. One generic just fell apart, and it was one I had to take throughout the day, and it would be half ⤵️ 2y
Riveted_Reader_Melissa ↪️ powdered in my pull case before I needed to take it. That one I needed the original formula. The other I take for an off brand diagnosis, it works great, but it‘s not what it‘s made for, so that one takes some fights to get too. 2y
Riveted_Reader_Melissa @tenar Luckily my doctor at least is up on the medicines for my condition, but it‘s a fight with the insurance companies. I really wish we‘d get National Healthcare, because the bureaucrats in insurance just follow their formularies for what‘s covered and don‘t understand anything about the diagnosis or conditions themselves. 2y
Riveted_Reader_Melissa @tenar I should add, this also works in reverse too. Pharmaceutical companies will “reformulate” with minor changes to get new patents and charge more. 1 cream my GYN proscribed was not covered by insurance ($100) told my doctor I couldn‘t afford that, turns out the prescription under patent that she prescribed was 2 older medicines just mixed together. She wrote me a prescription for each separately and suddenly it was covered and free ($0).⤵️ (edited) 2y
Riveted_Reader_Melissa ↪️ only difference is I mixed the 2 before applying. But pre-mixed they were a “new” product & patent. I always wonder how many women forked over the $100 or went without instead of going back to their doctor? (edited) 2y
tenar @Riveted_Reader_Melissa I‘ve had the same struggles with prior authorizations for both expensive pills and for off-label usage, but that reformulation thing just grinds my gears on your behalf! In any other industry, it would be a bargain to buy a 2-in-1! 🙄 And with the pill crumbling, it‘s frustrating what little care is often paid to how a patient will actually be using something in real life. Made me think again of the breast pumps. 2y
tenar @Riveted_Reader_Melissa My major struggle is that, for my central condition, there are still no highly studied medications, so everything is off-label. I honestly believe the lack of investigative funding is influenced by sexism, and I realize from this book that there‘s actually two aspects to it: first having women‘s suffering taken seriously, and secondly that it may be affected by sex hormones and therefore is “too complicated”. But, 2y
tenar @Riveted_Reader_Melissa in an awful turn of events, my condition is associated with Long-COVID, and is now seeing some national/global attention. And yet I still read that, at the individual level, female-presenting patients are being dismissed as anxious AKA hysterical. It‘s going to take a long time to root out the issues raised in this book, as I think the problems have to be solved both top-down and bottom-up. 2y
Riveted_Reader_Melissa @tenar I agree! And yes, so many that have been found for my condition were accidental finds, heck I was even accidentally diagnosed. 😂. I have Congenital Myasthenia Gravis, it‘s a muscle weakness disease… originally only thought to occur in the older population (in the 70‘s) until a resident saw me and said, that looks like this thing I just learned about in my last rotation (geriatrics). It was also never supposed run in families, until my⤵️ 2y
Riveted_Reader_Melissa ↪️ brother was diagnosed, then 2 of his 3 children, and by then a lot had been done in genetics and wow, there IS a gene for that. One of the medicines that work for me is an asthma medicine (neuromuscular disease), because someone who had both took and realized it helped both conditions. But yes, so much is tied back to “orphan” conditions that don‘t effect many people and therefore don‘t generate a lot of interest or funding. It‘s sad, ⤵️ 2y
Riveted_Reader_Melissa ↪️ because we really should divvy out funding for conditions, so they all get studied…instead of millions to a few big names and very little to anything else. I always thought it was name recognition or number of people effected, but this book shows that sometimes it‘s just what sounds cooler (say ED meds vs PMS, or the breast pump studies). 2y
Riveted_Reader_Melissa But then I bet that‘s true for lots of things….women complain about lack of pockets or uncomfortable bras, but that‘s ehh, we like your silhouette without bulgy pockets and you look better with VS underwire, so why change that. No male interest at all. Now if we expected men to have their wobbly parts lifted and separated in underwire because women found it “sexier” I bet there‘d be tons of scientists on making that more comfortable stat. So ⤵️ (edited) 2y
Riveted_Reader_Melissa ↪️ whether it‘s superficial or serious & life altering apparently everything has to framed towards how it would benefit men. 🤷‍♀️ 2y
Riveted_Reader_Melissa @tenar Which is rightfully infuriating 🤯 2y
Riveted_Reader_Melissa @tenar I had to go searching for this story again, but I thought you‘d find it interesting because it covers a lot of what we talked about. One of the pioneers of mRNA (a woman) couldn‘t get funding and was basically driven out of university science research….now that technology makes COVID Vaccines. 2y
Riveted_Reader_Melissa Could we hope she‘s be recognized for her work now with a Nobel Prize or something? 2y
tenar @Riveted_Reader_Melissa Woah, I bet it‘s been a wild ride, with the understanding of your condition changing so much in your lifetime. I know of autoimmune myasthenia gravis, but I didn‘t know of the congenital type/s. I wish you, your brother, and his children well! I so agree with the funding issue, between this book and the great articles you sent me, it seems like the way funding for medical research is distributed is Ridiculously prejudicial. 2y
tenar @Riveted_Reader_Melissa There were many potential uses for mRNA technology, yet no one was interested? It boggles the mind, as do the Viagra example and lack of research into our conditions. I have a dysautonomia, which is a dysfunction of the autonomic nervous system. Mine is called POTS and primarily disturbs the body‘s ability to regulate blood flow for eating, exercise, or against gravity when changing postures. It varies a lot in severity. 2y
tenar @Riveted_Reader_Melissa It‘s believed now to be autoimmune in nature and is often instigated by a viral infection, which is a common way to develop chronic disease, yet post-viral illness is hugely unrecognized and underresearched! And it causes me so much stress to know that politicians think it‘s okay to reach COVID herd immunity by infection instead of full vaccination, when as many as 30-40% of people who are infected experience Long-COVID, 2y
tenar @Riveted_Reader_Melissa and the majority of those people are women, and many of those millions of women will develop my condition, all even though it was preventable. 😞

The end of the NYT article says, ““There are probably many people like her who failed,” he said.” And I agree, but I think, better put, there are many people like her WE failed. I hope we can begin to do better. She better at least get a darn Nobel!
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Riveted_Reader_Melissa @tenar it‘s crazy to me how many risks we are taking with this thing because of long-Covid. We know people who are vaccinated can still get COVID, just usually not hospitalized & ventilated…but what are the odds of them ending up with long hauler symptoms and conditions. Or spreading it on to immunocompromised or children under 12, especially with these new virulent versions? But here, no one is masking, even businesses have removed the ⤵️ 2y
Riveted_Reader_Melissa ↪️ plexiglass barriers. But the Governor here can‘t reissue any mandates (the state legislature took the power away from the Gov. recently ((they are Rep. he‘s Dem. and trampling their rights & the economy yadda yadda) so there won‘t be any new mandates either). It‘s very worrying to me. If I had a child under 12, I think I‘d have to look into cyber school for the next year. (I don‘t have any children, but I know many people who do.) And I ⤵️ 2y
Riveted_Reader_Melissa ↪️ worry for a bunch of my friends who are disabled. I know a few people with immune system issues which vaccines don‘t always work the best on because their system is downgraded, but I also know a few in cancer treatments etc that are currently taking treatments that suppress their immune systems. 2y
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KathyWheeler
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What I learned from part 4 of this book is that women are often misdiagnosed, given incorrect treatment, and are potentially being denied lifesaving medicines because of the lack of data on how symptoms of some conditions differ in women. There‘s also a tendency to assume the pain women describe is all in their heads, and women are often excluded from clinical trials because of the “messiness” of dealing with our fluctuating hormones. 🤬 #SheSaid

Cosmos_Moon My mom‘s friend was diagnosed with pancreatic cancer and thought it was a death sentence. Went through some rounds of chemo, then later was told she never had cancer. So crazy. 2y
KathyWheeler @Cosmos_Moon 😳. I feel lucky with my doctors, but I‘ve had friends who‘ve been told their chronic, severe pain was in their heads, and my daughter was told she needed to pull herself out of depression. 😡 2y
Riveted_Reader_Melissa Yes! This part hurt me to read. As someone with a chronic condition it was scary and maddening…not only is it not all in your head, you are actively being gaslight by the whole system. No wonder women end up hysterical (not hysteria which is fake too), complaining of severe issues and being constantly ignored and told you‘re crazy can make you a bit crazy and standoffish with doctors who then label you as a “difficult” noncompliant patient. 2y
KathyWheeler @Riveted_Reader_Melissa Exactly! I don‘t know how I lucked out with my doctors here, but they have always listened to me. But you shouldn‘t have to be lucky like that! Doctors should take women‘s health issues as seriously as they do men‘s. 2y
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review
Riveted_Reader_Melissa
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Pickpick

I had to finish this one a bit early this week #SheSaid, and I can‘t wait to talk about it the next 2 weekends, but the library wanted it back and the wait list was long, so I needed to finish it up and return it. Needless to say, I learned a lot in this one, things I hadn‘t really thought about before, and I will be recommending this one a lot in the future I think. #MustRead

Jess861 I definitely need to pick up this book! 2y
KathyWheeler I went ahead and finished it too since it was going to be automatically returned to the library tomorrow. (edited) 2y
Riveted_Reader_Melissa @KathyWheeler Yep, same problem… so close, but not quite! 2y
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Riveted_Reader_Melissa
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A short Part, but very impactful…for me at least. I‘m learning a lot, and a lot that I‘m finding rage inducing. I get that many things were designed by men, but how could they have never once considered what might be best for the other half of their demographic (their paying customers) besides maybe making it in pink? There are willing to try anything to increase sales, but apparently talk to women and include their needs? 🤯. ⤵️

#SheSaid

Riveted_Reader_Melissa ↪️ If half the population is this easy to ignore, and can become invisible….what chance do other actual minorities(less than 1/2 the population) have? 🙄🤯🤦‍♀️ 2y
Riveted_Reader_Melissa For whatever reason Litsy wouldn‘t just let me “copy in” the tag list in the comments, so I tagged you in the post itself instead. If anyone would like to be added or removed from the tag list, please let me know. 2y
MallenNC That was the part of this section that made me mad — that developers wouldn‘t even take time to talk to women customers to see what would work. And that often the proposed solution was for women to change, rather than changing to product. 2y
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MallenNC Also the danger of not testing cars with women sized dummies! Women drive! We should know the safety standards apply to all people. 2y
KathyWheeler @MallenNC That part has made me a little antsy about even getting in cars! The casual dismissal of women‘s needs is enraging. 2y
MallenNC @KathyWheeler I know! I just had to buy a new car and of course safety features were influencing my choice. Then I read that chapter and wonder if it even makes a difference. At least my blind spot detector isn‘t affected! 2y
KathyWheeler I think what they do when they “design” for women is just make the product pink and charge more for it. 2y
Riveted_Reader_Melissa @MallenNC Right! Back to the brilliance bias…men are “Brilliant” so obviously the idea is fine, it‘s women that are too slow to see it and need to change….but let‘s make it pink, that will work, they‘ll want it even if it increases their labor load. 🙄 2y
Riveted_Reader_Melissa @KathyWheeler Yes! Maybe add perfume! 2y
KathyWheeler @MallenNC I bought a new car a couple of years ago, and, like you, safety features were a big draw. Now, like you, I wonder if that even mattered.😡 2y
tenar I enjoyed this section, as much as it made me mad, because I found learning about the uses, problems, and design challenges of cookstoves fascinating! I‘m passionate about global sanitation, particularly to improve quality of life for women, so this was something adjacent I was surprised I‘d never read about before. I agree, looking for flaws in design before we decide there must be flaws in the individuals is a great takeaway for many problems. 2y
tenar And yes, this section really added on to what we learned from Backlash about the resistance to receiving input from women in product & policy design. (Even in products that will be marketed to women!) It remains mystifying and angering, doesn‘t it? Is it as simple as women are trained to empathize with men, but men not with women? Do we actively train men against empathizing with women? Or do men just think women can‘t have valuable input. 😩 2y
Riveted_Reader_Melissa @tenar I‘m thinking it goes right along with when we train them for that “brilliant bias” something we must be doing subconsciously between the ages of 5 & 6 apparently…it was amazing to me that they could literally find the difference between those two ages… which coincidentally is the same age most kids start or complete their first year of organized education. 2y
MallenNC @tenar That‘s the question, isn‘t it? What makes developers and decision makers (often men) unable to see the usefulness of getting input from women? 2y
Riveted_Reader_Melissa @tenar The cookstove part immediate made me think of Behind the Beautiful Forevers, about living in poverty in India. 2y
vlwelser I thought it was interesting that they insist on "training" women to use their brilliant idea rather than getting their input and designing something that doesn't require training. 2y
vlwelser Also the breast pumps. It's like no one thinks about a better way to do something so basic and instead expect women to deal with something that works but isn't convenient. And that women find demeaning. Like you're just a milk producer and don't have anything better to do. 2y
Riveted_Reader_Melissa @vlwelser Yes…. Nothing better to do, like maybe snuggling a new infant, or catching a nap while they are napping. I was glad she mentioned the phone purse pocket connection…it‘s such a little thing, pockets, but so important for other things! And yet designers refuse to add usable pockets, because they ruin the line of the dress. In other news, semi related, the women‘s volleyball team is complaining about their skippy bikini bottoms, they want⤵️ 2y
Riveted_Reader_Melissa ↪️ shorts bottoms like guy volleyball teams, but were denied. The biggest comment on Twitter, well they can‘t do that, they‘d lose most of their ratings (in other words people only tune in to see them in the bikinis, but guys they watch for the game 🙄). https://www.google.com/amp/s/junipersports.com/controversy-with-the-bikinis-of-n... (edited) 2y
Riveted_Reader_Melissa ↪️ I should specify this is the Norwegian team, their country still register the bikinis “Norwegian women have been threatened with fines if they wear any type of clothing that covers more than 10cm from the beginning of the legs.” 2y
AnneCecilie Regarding the volleyball team: it says in the article that it was the national federation that denied it. That‘s not correct. The national federation was prepared to pay the fine for allegedly the games for all the plays, if I‘m correct a total of NOK 50.000 = USD 5.000. But the team said they were threatened with disqualification by the international federation and they wouldn‘t risk it. I think they still protested in their last game. 2y
vlwelser I don't watch sports really but this seems ridiculous. I imagine other sports have similar issues when you think about it. Gymnastics and figure skating pop into my mind. Everyone is nearly naked in swimming though. It seems weird that volleyball would require a bikini. They don't get extra points for having straight legs or looking graceful when they land. 2y
KathyWheeler During the 2016 Olympics I was posting, on Facebook, about the clothes women wear for beach volleyball, and all the comments I got were along the lines of, “That‘s what they like to wear,” and “They choose their uniforms,” 🙄 2y
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KathyWheeler
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Well, now I know why my iPhone doesn‘t fit my hand comfortably (even though the majority of iPhone users are women) and why I‘m always jerking around on my seatbelt trying to make it more comfortable. I‘m also having to fight the urge to never get in a car again. #SheSaid

Riveted_Reader_Melissa It‘s really enlightening and annoying all rolled up into one isn‘t it? 2y
Suet624 Your review definitely changed my mind about wanting to read this. 👍 2y
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KathyWheeler @Suet624 it‘s really good and readable as well. Generally, you say “data” to me and I start snoring. This one is not boring at all. 2y
wanderinglynn I am ALWAYS jerking on my seatbelt! I‘m definitely going to read this. 2y
KathyWheeler @wanderinglynn Since reading this section, I‘ve watched my husband while he‘s in the car — no jerking around on the seatbelt. Now I know why. 2y
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