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Off the Spectrum: Why the Science of Autism Has Failed Women and Girls
Off the Spectrum: Why the Science of Autism Has Failed Women and Girls | Gina Rippon
4 posts | 2 read | 6 to read
A cognitive neuroscientist reveals how autistic women have been overlooked by biased research--and makes a passionate case for their inclusion Who comes to mind when you think about an autistic person? It might be yourself, a relative or friend, a public figure, a fictional character, or a stereotyped image. Regardless, for most of us, it's likely to be someone male. Autistic women are systematically underdiagnosed, under-researched, and underserved by medical and social systems--to devastating effects. In Off the Spectrum, cognitive neuroscientist Gina Rippon sheds light on how old ideas about autism leave women behind and how the scientific community must catch up. Generations of researchers, convinced autism was a male problem, simply didn't bother looking for it in women, creating a snowball effect of biased research. To correct this "male spotlight" problem, Rippon outlines how autism presents differently in girls and women--like their tendency to camouflage their autistic traits, or how their intense interests may take a form considered to be more socially acceptable. When autism research studies don't recruit female participants, Rippon argues, it's not only autistic women who are failed; it's the entire scientific community. Correcting a major scientific bias, Off the Spectrum provides a much-needed exploration of autism in women to parents, clinicians, and autistic women themselves.
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BookishMarginalia
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It turns out four years is long enough to burn out, get pushed into reinvention, learn you‘re autistic, build a new life (with the same wife and a few more cats), and still miss the gentle chaos of Litsy. I was #BookishMarginalia back then; I still am, just with better self-knowledge and a lot more joy. If we knew each other before, hi again. If not, I‘m glad we‘re starting fresh. I‘m now a self-employed writer & coach who still 🫶🏼 books!

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review
MaggieCarr
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Pickpick

"Autism's Lost Girls and Women have Long been overlooked, unrecognized, underdiagnosed, and left off the spectrum." This book explains how it happened and is a call to action to correct it, but a Cognitive Neuroscientist that says she was part of the problem and how she intents to improve research in the future. This book actually had me thinking about adults in my life and wondering if their tendencies are also attributed to undiagnosed...

MaggieCarr ... undiagnosed autism instead of the cornucopia of labels they've been given. 4mo
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review
CoffeeK8
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Pickpick

This book can be a really great resource and overview about Autism in women. It was informative and provided some great insight into how women were overlooked during research for so long, and the different ways that Autism presents in women. It would be a great resource for someone starting their journey into learning more about this topic.

CoffeeK8 There were some moments (the use of the word "normal" at certain points, comes to mind) that are worth noting, but overall it was a worthwhile read.

Thank you to #Netgalley and #HachetteAudio for an #ARC of this book in exchange for an honest review.
7mo
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Lands
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It is possible to go into a bookstore without buying anything. I did today. I almost didn‘t. See. This looks interesting.

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