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An American Sickness
An American Sickness: How Healthcare Became Big Business and How You Can Take It Back | Elisabeth Rosenthal
At a moment of drastic political upheaval, a shocking investigation into the dangerous, expensive, and dysfunctional American healthcare system, as well as solutions to its myriad of problems In these troubled times, perhaps no institution has unraveled more quickly and more completely than American medicine. In only a few decades, the medical system has been overrun by organizations seeking to exploit for profit the trust that vulnerable and sick Americans place in their healthcare. Our politicians have proven themselves either unwilling or incapable of reining in the increasingly outrageous costs faced by patients, and market-based solutions only seem to funnel larger and larger sums of our money into the hands of corporations. Impossibly high insurance premiums and inexplicably large bills have become facts of life; fatalism has set in. Very quickly Americans have been made to accept paying more for less. How did things get so bad so fast? Breaking down this monolithic business into the individual industriesthe hospitals, doctors, insurance companies, and drug manufacturersthat together constitute our healthcare system, Rosenthal exposes the recent evolution of American medicine as never before. How did healthcare, the caring endeavor, become healthcare, the highly profitable industry? Hospital systems, which are managed by business executives, behave like predatory lenders, hounding patients and seizing their homes. Research charities are in bed with big pharmaceutical companies, which surreptitiously profit from the donations made by working people. Patients receive bills in code, from entrepreneurial doctors they never even saw. The system is in tatters, but we can fight back. Dr. Elisabeth Rosenthal doesn't just explain the symptoms, she diagnoses and treats the disease itself. In clear and practical terms, she spells out exactly how to decode medical doublespeak, avoid the pitfalls of the pharmaceuticals racket, and get the care you and your family deserve. She takes you inside the doctor-patient relationship and to hospital C-suites, explaining step-by-step the workings of a system badly lacking transparency. This is about what we can do, as individual patients, both to navigate the maze that is American healthcare and also to demand far-reaching reform. An American Sickness is the frontline defense against a healthcare system that no longer has our well-being at heart.
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mrozzz
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Wishing everyone in America well today, and hoping we all remember the important parts of our past and present, even when they‘re ugly ♥️🇺🇸

swishandflick ❤️❤️❤️ (we need to do another NYC Meetup soon!) 5y
kspenmoll Happy 4th to you!!! 5y
rachelsbrittain ❤❤❤ 5y
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BarbaraTheBibliophage Great stack. Happy holiday to you!! 5y
mrozzz That would be great!! 💜💜💜 @swishandflick 5y
mrozzz @kspenmoll and to you!! 😄♥️ 5y
mrozzz @rachelsbrittain 💗💗💗 5y
mrozzz @BarbaraTheBibliophage thank you!! Happy 4th!! 😄💜 5y
95 likes8 comments
review
Deborah42
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Pickpick

A must read for anyone who has to navigate the US healthcare system. While it‘s not especially surprising that the pursuit of profit by hospitals and pharmaceutical companies has not resulted in better, cheaper care for patients, it‘s disheartening.

The author lays out a detailed case for how we got here and offers suggestions for making changes, both personal and systemic.

Did I mention that this is a must read?

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DocBrown
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Pickpick

Well I finally managed to get all the way through this. I kept getting sick with disgust and righteous indignation. Though at times it felt like the whole was less than the sum of its parts, still a necessary and helpful read. I plan to purchase a print copy for all of the practical advice it contains—far too much to remember from a listen.

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DocBrown
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Our health care industry is truly f-ed up. But, good news — I made yummy tater tot casserole for dinner!

SW-T 😊 6y
Lauram I just snorted in a quiet office. I hope it was as good as it looks. 6y
DocBrown Too bad you can‘t taste it from there @Lauram. It was very yummy 😋 6y
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Lauram Bacon, cheese, and potatoes? I‘m sure it was amazing. 6y
huntersmom1977 Oh yum! I make a new dish every Saturday evening and stumbled upon an almost exact recipe but using lean ground beef instead of bacon. Nom nom nom 6y
DocBrown @huntersmom1977 This one has both! 6y
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DocBrown
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This book is literally making me sick to my stomach. Since I have a chronic disease I‘m scared to death of losing my health. Hence I‘m heading out this morning for a 14-Mile run. Lights on for safety! But I‘m even more scared of being bankrupted by the cost of even a routine hospitalization. We need to fix American health care before it takes us all down!

Suet624 Knowing the reasons we don‘t have universal health coverage also makes me sick. I wish you good health. 💕 6y
DocBrown Thanks @Suet624! I just ran 14 miles in 2:19:46. I recently read that I can reduce my risk of cardiovascular disease by up to 70% by having a high VO2 Max. So I‘m working on that. 6y
Lreads Please be careful and don't over-extend yourself. ☺ 6y
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DocBrown @QuietlyLaura you are so kind. 6y
BarbaraTheBibliophage Hope you had a good run. I‘m a swimmer—bad knees. But I do like getting my heart pounding! And I also found this book scary and frustrating. 6y
Suet624 @mdhughes72 that‘s an impressive run. I‘d be on the couch for weeks if I did that! 6y
Ingerella Great job on the run! 6y
DocBrown Thanks @BarbaraTheBibliophage and @Ingerella! I can only read the book in short spurts. Otherwise I get too angry. 6y
RadicalReader @mdhughes72 I hope things continue to get better for you. You‘re a strong individual who can conquer anything and will continue doing so because that is what incredible individuals do 6y
DocBrown I appreciate the words of encouragement @RadicalReader. I‘m feeling strong after another longish run today. 6y
Soozee Wow! Brilliant run. (No pun intended. 😉) 6y
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Kathrin
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Pickpick

How the author distilled the problems in the American health care system down to ten economic rules that she continuously refers back to is eye opening... and infuriating.

Riveted_Reader_Melissa Such a great book!! 6y
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BooksAtNight
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Pickpick

Eye opening and a little frightening at the same time. Is this biased? Yes, absolutely. Rosenthal js arguing against a system she sees as being unfair to the patients, but she takes care to remind her readers that not all doctors/nurses/medical professionals are out to “get you”. But now I‘m scared of getting sick 😳

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Laura317
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Pickpick

Informational look at American health care. I thought it was pretty good, but I do see some reviews that state the author was either biased or Ill-informed. I learned some things to keep an eye out for in the future.

QuoteQueen My curiosity is peaked. 6y
Laura317 @QuoteQueen It is worth the read, imo. I might check out some other books similar to it mentioned on Amazon. 6y
QuoteQueen @Laura317 I was aware that healthcare had turned into a business, but I am VERY interested to hear how to take it back! Gonna go add it to a wishlist right now! 6y
Laura317 @QuoteQueen It‘s going to take a lot of us to make that happen! You might check out your library. Mine had it. 6y
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Laura317
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This book is really eye-opening. I already knew that medical costs are high - I didn‘t know how big business takes advantage of people when they are at their most vulnerable. I look forward to the action plan coming up.

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Laura317
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Finally, FINALLY got this today from the library. I asked for it about 4 months ago.

Suet624 I don‘t know if it‘s possible in my lifetime. 6y
Zelma @Suet624 not at all. It‘s way too far gone. 6y
Laura317 Sadly, I agree. @Zelma @Suet624 6y
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strandbookstore
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Pickpick

This illuminating book reveals facts about the U.S.'s dysfunctional healthcare system that will both enlighten and disturb. It explains how the health care industry has become a big business, lacking concern for patients and medical ethics. Through her investigation of healthcare, the author reveals ways in which the system can be reformed for the better. https://goo.gl/SyAgzB

Graciouswarriorprincess I have this to read in Libby. 6y
usafahad How is this possible that a such kind of super power has dysfunctional health care system 6y
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Nitpickyabouttrains
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Pickpick

Super interesting look at the medical insurance industry in the USA. Gross and hard to look Away. Really good at describing a lot of terms I have heard before but not totally gotten.

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BarbaraTheBibliophage
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You are such a peach! 😘 Thanks for another #payitforward #giveaway @Booksandcooks #7777giveaway

This was my last five-star read. Made me angry but gave me hope too. WE have to make the change b/c the healthcare industry surely never will!

Megabooks I have been really tempted to get this several times. #stacked 6y
Megabooks Also perfect for #nonfictionNovember. Are you doing that this year? 6y
BarbaraTheBibliophage @Booksandcooks I think you‘ll like it! Every month is a #nonfiction month! 😀 6y
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BarbaraTheBibliophage
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Putting my October summary out there. More #nonfiction than fiction again this month. And I used to say, "Oh, I can't read nonfiction!" How times change.

I didn't read a single fiction book in October that truly captivated me. Sigh. Here's hoping for a better, more fictional (?) November.

merelybookish That's so interesting how tastes change! Do you know how or why? (Asking as one who loves fiction and reads the occasional nonfiction.) 6y
RaimeyGallant @merelybookish I think there needs to be a nonfic subject that really interests you. 6y
cathysaid 👏👏 6y
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MarriedtoMrT Same with me and nonfiction. Still not a ton but I‘ve probably read more nonfiction this year than I did in the previous 10 years. 6y
MarriedtoMrT @merelybookish This year I have become an occasional nonfiction reader after never having read it for pleasure before. For me, Litsy was the catalyst because I got intrigued by reviews. I had never found nonfiction that could read as smoothly as fiction until Radium Girls. Now I really enjoy listening to nonfiction audio. 6y
BarbaraTheBibliophage @merelybookish I started reading NF at a slow pace and not too often for work-related books. Then my DIL raved about memoirs she had read. She only reads NF. I started picking them up too. Then Litsy happened! 😜 6y
BarbaraTheBibliophage @MarriedtoMrT I loved Radium Girls! Another one that reads like fiction is (edited) 6y
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BarbaraTheBibliophage
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Pickpick

Concerned about your own health? If you live in the US, it's also the healthcare system that's sick! Rosenthal lays it all out in a readable way. Chronic illness has forced me to become savvy in the last few years, and I still learned a great deal. The various players in the system are in it for profit not patients! You'll both get angry and get smart.

Full review at www.TheBibliophage.com

SkeletonKey I was at the doctor today and thinking how strange it was that I spent just as much time discussing how to get insurance to cover this and that as I did to find out what was wrong. 6y
BarbaraTheBibliophage @SkeletonKey Oh yes. It's so crazy. Hope you found or find soon a good solution! 6y
Updrifting God I'm already so angry over what we have I'm unfit for conversation. 😣 6y
BarbaraTheBibliophage @Updrifting I‘ve benefited from ACA but the future looks a mess. 😮 6y
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Riveted_Reader_Melissa
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October round-up

#OctoberStats #October2017

queerbookreader Wow you killed it this month bravo 6y
Laura317 You always have the best non-fiction books. @Riveted_Reader_Melissa 6y
Ms_T Great job! 👍🏻 6y
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Riveted_Reader_Melissa
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All up to date on my #Nonfiction2017 @Booksandcooks

Megabooks Yay!! I only read two nonfiction this month. Hoping to step up my game in November! 6y
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BarbaraTheBibliophage
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Medical devices are being used without even being tested for safety or effectiveness. It is criminal! I am so angry. 😡😡

(If you're only seeing this post, I also just posted three others on this topic.)

Leftcoastzen Stuff like this just makes me furious! This kind of thing should never happen. 6y
Dolly We need some regulation here. I would've thought we were protected, but no. Why haven't we heard anything about this from doctors? 6y
minkyb Maddening. 6y
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BarbaraTheBibliophage @Dolly The devices are regulated, but the system is 100% rigged in favor of the manufacturers and not the patients. 6y
BarbaraTheBibliophage @Leftcoastzen @minkyb I couldn‘t agree more. 6y
kspenmoll Barbara, totally different topic but did you see this article in New Yorker? https://www.newyorker.com/magazine/2017/10/30/the-family-that-built-an-empire-of... 6y
kspenmoll Also, thanks for sharing this book. Scary stuff. Esp with our recent Pres who wants to deregulate. My husband used to a medical writer for CT newspaper back in the day so he still shares info with me. 6y
BarbaraTheBibliophage @kspenmoll I will read the article. I've heard parts of this story, but not the whole thing. Thanks! Your husband would probably appreciate this book - although he may be more aware of the craziest stuff than most of us. 😮 6y
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BarbaraTheBibliophage
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Yup, that medical device can be "fast tracked" to FDA approval even if the device it is similar to has been HARMFUL or FAILED. This book is teaching me so much, and I thought I was pretty hip to medicine's flaws. ? 3/3

AmandaL I've got this out from the library now. I haven't started it yet, but I have a feeling I'm going to get very aggravated reading it. 6y
BarbaraTheBibliophage @AmandaL I'm aggravated, yes. But being a smart consumer / patient is always better. 6y
AmandaL @BarbaraTheBibliophage That's the truth! 6y
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BarbaraTheBibliophage
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If a medical device maker is producing a device that's almost the same as another, they can "fast track" FDA approval without ever testing it on humans. So if you don't ask, you may later find that you're the 3rd or the 10th person with the device, instead of the 3000th. 2/3

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BarbaraTheBibliophage
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I have a series of screen grabs for you about medical devices. They are far less regulated than pharmaceuticals, and yet are often permanently implanted in patients' bodies. Think hip replacements. And if it goes bad, the patient is on the hook for the removal and replacement. In other words, you still have to meet that deductible even if it's the device manufacturer's fault the hip went bad. 😡😡1/3

Libby1 This exact thing happened to my Dad with a hip replacement, @BarbaraTheBibliophage . It was horrible. 6y
Yellowpigeon I've been reading about the vaginal mesh debacle happening in the UK. Horrifying 6y
BarbaraTheBibliophage @Libby1 I'm so sorry your dad had to go through this. It is truly a criminally negligent situation. These manufacturers will do anything for a profit! 6y
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BarbaraTheBibliophage @Yellowpigeon That's in this book too. Happened in the US as well. It is horrifying! 6y
HippieChickHomeschool Sounds like true horror for Halloween!!! 6y
BarbaraTheBibliophage @HippieChickHomeschool Yes! Wish it was just a silly trick and not real. 6y
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dariazeoli
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Nobody knew, guys. 😐

#NoOneKnows
#Rocktober

MCYmermaid 😶 6y
Andrew65 😂 6y
Cinfhen Hilarious 😂🤣😂although scary 😬 6y
BarbaraBB Haha! 6y
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Rcoco
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Pickpick

Everyone should read this!! I am disgusted but at least feel empowered by this book.

Riveted_Reader_Melissa It was great! I just recently finished it too! 7y
Rcoco @Riveted_Reader_Melissa yes I saw all your great blurbs and that's what got me interested. Thank you! 6y
Riveted_Reader_Melissa @Rcoco You‘re welcome! I‘m still in awe of Litsy...I‘m still very excited to see someone read the same book I did, it still doesn‘t quite occur to me that my posts might have encouraged them to read it. 🤷‍♀️😂 6y
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BarbaraTheBibliophage
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I decided to get the ebook from the library, and it came through surprisingly quickly. It's all @Riveted_Reader_Melissa 's fault! I know this will make me mad, and I doubt I'll finish in the 14 loan period. But maybe I will ... #nonfictionchallenge2017 #ushealthcare #willweeversolvethecrisis

Riveted_Reader_Melissa You might! It goes surprisingly fast! 7y
Laura317 I hope you post some from it! @BarbaraTheBibliophage I'm still waiting on my library copy. 7y
BarbaraTheBibliophage @Laura317 I'll do my best, but in the meantime @Riveted_Reader_Melissa has posted quite a few screenshots. Check them out too! 😎 7y
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Riveted_Reader_Melissa
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And the book I finished yesterday became even more relevant as some protections were undone today.🙁

AmyG People will buy plans only to find out they don't cover so many things. :( 7y
Riveted_Reader_Melissa @AmyG Yep, and to compete more plans will start dropping basic services, which will led to bigger out of pocket costs for all. 🙁 7y
minkyb Sickening 7y
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Buddys_Momma Not my President 👎🏽 7y
Riveted_Reader_Melissa @Buddys_Momma I‘m still with her🙁 This is the longest almost 9 months ever, all 4 years seems like an eternity! And every day he‘s making a fuss over nothing and changing the subject from important things like Puerto Rico. 7y
Buddys_Momma You‘re right....and this new round of assaults on the ACA is just concerning. This is the most exhausting President.... 7y
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Riveted_Reader_Melissa
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Pickpick

If you are lucky every year you‘ll stumble across one or two non-fiction books that are so on topic for the current discussion with both tons of useful and informative examples and lots resources and ideas to move forward. This is the book to read this year! It details, in easy to understand ways, how the US healthcare system has spun so far out of control, as well as some common sense solutions to slowly start nudging it back on track. #MustRead

BarbaraTheBibliophage Based on your recommendation, I NEED to move this up to the top of my TBR. Overdrive searching now ... 7y
BarbaraTheBibliophage Now on hold! I wouldn't be surprised if I buy a copy, but this will get me started first. 👏🏻👏🏻 7y
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Riveted_Reader_Melissa @BarbaraTheBibliophage Great! I can‘t wait to see what you think when you read it! 7y
BarbaraTheBibliophage I need to go back and read all the quotes you posted also. I couldn't concentrate this week, but it's getting better today. 7y
BarbaraTheBibliophage We need a #nonfictionbookclub! Heck. We already have one, right? 😜 7y
Riveted_Reader_Melissa @BarbaraTheBibliophage Yep! It‘s a huge one called Litsy! 👍 7y
Riveted_Reader_Melissa @BarbaraTheBibliophage But yes, I know what you mean. There are so many out there sometimes it‘s good to have such a large pool reading them to find the gems. 7y
BarbaraTheBibliophage Oh so many gems on my TBR!! Looking forward to discussing this one with you! 7y
mrozzz You made it through!! Loved seeing the quotes you post. This one is staring at me from the floor next to my bed.... must get to it .... 7y
Riveted_Reader_Melissa @mrozzz It‘s actually a pretty quick and easy read. Yes you must get to it, I can‘t wait to see what you think. (edited) 7y
CafeMom This sounds like a great book. I have put it on my TBR list. 7y
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Riveted_Reader_Melissa
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Another great idea.... as some of the examples in the book show that they buy and stop producing one type (the cheaper version) just to sell a higher priced versions.

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Riveted_Reader_Melissa
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That‘s be a great one! If you have an existing, already documented condition, why do we have to tie up the doctor and pay for an appointment every 6 months /year just to have the same medicine re-prescribed!

Laura317 Yes!! 7y
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Riveted_Reader_Melissa
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🙄

BarbaraTheBibliophage Sure looks like you highlighted the whole darn book!! 7y
Riveted_Reader_Melissa @BarbaraTheBibliophage I felt that way at times! LOL 7y
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Riveted_Reader_Melissa
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Elect or organize to have an appropriate person appointed to the regulatory position (depends on your state if the position is appointed or elected).

And of course get money about of politics, so paying to campaigns does equal appointments and favors.

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Riveted_Reader_Melissa
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A few more good points in the end of this great book....sorry if you are tired of seeing them all.

AmandaL I'm actually loving these posts. I've been sharing them with my husband. The state of healthcare and the costs are infuriating. 7y
Riveted_Reader_Melissa @AmandaL You really need to check this book out then! 7y
AmandaL @Riveted_Reader_Melissa I just requested it from the library. 😊 7y
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Laura317 @AmandaL I hope you have better luck than I did. I'm #29 on 4 copies. I wish I belonged to a bigger library. 7y
AmandaL @Laura317 Oh wow! I'm the only hold on three available copies. I hope your wait isn't too long. 7y
Riveted_Reader_Melissa I‘m so glad you are both interested, hopefully you both find it informative and useful. @AmandaL @Laura317 7y
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Riveted_Reader_Melissa
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I Can Not emphasize this one enough!!! I worked at a small company for years, and employees often grumbled about their lack of raises, what they never realized was that their base pay did increase, it was all just gobbled up and then some by the increasing healthcare costs. Unfortunately that huge bill is hiding in with payroll expenses divided up over time allowing it to become invisible to those “lucky” enough to have employer based plans.

EchoLogical 😱 7y
ValerieAndBooks So true!! I just read an excellent essay today — I‘ve tagged you in the post that provides a link to it. 7y
Riveted_Reader_Melissa @ValerieAndBooks Great, I‘ll read it! 7y
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Riveted_Reader_Melissa
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How to fight out-of-network charges.

8leagueboot I have to read this. 7y
Lizpixie I am so glad I live in Australia! Our waiting lists for elective surgery may be long, but at least there's no out of pocket expenses. Every Australian citizen gets a Medicare card which entitles them to free healthcare. When you have prexisting conditions like I do, it's a godsend. Though even here, getting in to see a specialist will cost you on the day, but Medicare gives you back I think it's 70% of the fee? 7y
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Lizpixie And if you can't afford a specialist consult, you can go to an emergency room of any hospital, see a doctor there & get a referral to an in hospital specialist which is covered by Medicare.I see a Professor who specialises in Pain Management in the Pain Clinic of my local hospital for nothing & can get my script for gabapentin(which costs about $50 at a drugstore) for $5 at the hospital pharmacy. If I saw him in his private rooms I'd pay over $500 7y
Cathythoughts Yes @Lizpixie we have a similar system here in Ireland. It's only right. My husband had to go to hospital in Australia a few years ago , while we were there, and the care was second to none. He had a major operation & no charge ! I think there is some agreement between our countries 👍👍👍 7y
Riveted_Reader_Melissa @8leagueboot It‘s a great read! 7y
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Riveted_Reader_Melissa
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Do your own research and know what that procedure should cost.

Laura317 Wow. I need to seriously get my hands on this book. I was not aware of a health care blue book! 7y
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Riveted_Reader_Melissa
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🤦‍♀️ Over 90%., no wonder they don‘t like providing itemized bills!

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Riveted_Reader_Melissa
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Ask questions! Lots of questions!

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Riveted_Reader_Melissa
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Wouldn‘t it be great to know what you will be billed before you go! 🤔

Suet624 Yes it would. 7y
Laura317 When I went to have my gallbladder removed, the doctor told me exactly what I'd pay out of pocket. It was spot on. No idea if I paid a fair price. Hmmm. 7y
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Riveted_Reader_Melissa
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😲🤦‍♀️

mrozzz ?!??? 😱😭😩 7y
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Riveted_Reader_Melissa
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vivastory Whoa 7y
RebL 😒 7y
Suet624 I remember when Oliver did that. I thought he was brilliant. 7y
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Riveted_Reader_Melissa
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I made it to the end of Part I and The summary of the first part! 😥

I‘ll save part II for tomorrow and hope there‘s some answers in there!!!

(I have to go read something lighter now...🙄)

Laura317 Just the summary makes my head hurt! Who's making all the money? 7y
Riveted_Reader_Melissa @Laura317 You have to read this one! They all are basically working the system to their best advantage to make more profits...everyone from the hospitals, to insurers, to device manufacturers, to drug makers, to non-profit groups! It‘s insane the amount of greed built into the system, and this book is full of eye rolling examples. 7y
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Riveted_Reader_Melissa
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In a part about how Politicians, Insurers, Hospitals, etc have and are undermining the ACA “Obamacare” It isn‘t that it isn‘t working, it‘s that they are shifting the burden of payment so they can still get their huge profits in most cases.

DrexEdit 😬😬 7y
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Riveted_Reader_Melissa
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...”commissioner as the Affordable Care Act was being enacted and implemented. “In healthcare, entrepreneurship outsmarts regulation every time.””😢

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Riveted_Reader_Melissa
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And how they are already circumventing and finding loopholes to make more money in the system.... so sad that it was revolutionary to try and create a system of healthcare for everyone. 🤔🙄

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Riveted_Reader_Melissa
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Close the emergency room because it can‘t afford it, but the CEO is being paid What now?!?!

Always pay attention to what a CEO is being paid, both at hospitals and insurance companies for that matter.🤔🤦‍♀️

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Riveted_Reader_Melissa
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So consolidate and incorporate, absorbing all the other smaller local hospitals, and then when people have no where else left go raise the rates! 🙄

ValerieAndBooks Interesting that Arcata is mentioned here. My parents live in the next town over, and they have to drive down 4 hours to Santa Rosa for anything beyond general practice. In fact they were headed down there today for an appointment but turned back home when they realized Santa Rosa was burning and evacuating 😱 7y
Riveted_Reader_Melissa @ValerieAndBooks I saw the burning on the news, I hope their home is in a safe area. And this is a really interesting book! 7y
ValerieAndBooks Thank you— my parents should be fine as they‘re four hours away from that doctor‘s office. It does look like an eye-opening book! 7y
Suet624 Sigh. 7y
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Riveted_Reader_Melissa
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Here you go @DivaDiane pass it on!

Crowdsourcing funds for a type 1 diabetes trial website information, because no one else will fund her research (they‘ll loss money in the long run if there‘s a cure)

Riveted_Reader_Melissa @DivaDiane If you live anywhere near Maybe see if she‘s looking for participants in the trial? 7y
DivaDiane Unfortunately, I live in the U.K. Otherwise, I'd be a willing guinea pig! 7y
Daisey There are several Type 1 diabetics among my family and friends. I'll have to look into this. 7y
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Riveted_Reader_Melissa
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🤔🤦‍♀️😱

DivaDiane A very interesting page (I have type 1 diabetes) 7y
DrexEdit 😨😲 7y
SaraBeagle Ah! You got to the part about the potential cure no one wants to fund! This part hit me hardest out of the whole book. 7y
Riveted_Reader_Melissa @DivaDiane This whole section, with that example would be very interesting to you....interesting in a sad way unfortunately though. 7y
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Riveted_Reader_Melissa
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And just when you thought it couldn‘t get any worse, everyone hands are in the pie for profit....you find out even the “non-profit‘s” are in it for the MONEY! 😱😱

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Riveted_Reader_Melissa
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“The problem is that many charitable foundations no longer see themselves as funders of research is for knowledge propelled by donor dollars to cure a disease, but instead as investors in new treatments. BCG had been used for so many decades in generic form that there was no way to make money selling the drug. “Now they all want equity in the product and a product that will give back,” Dr. Faustman said”

She is now Crowdsourcing the Funding! 😱

Riveted_Reader_Melissa Just let that sink in a minute....our huge bills and premiums and she needs to resort to Crowdsourcing to find the funds to run her trails to possibly, at least partially, cure diabetes!!! 😭😱😭😱🤦‍♀️ 7y
DivaDiane Tell me where this crowdfunding is happening, please. I read about her research 12/13 years ago! 7y
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