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Disability Visibility
Disability Visibility: First-Person Stories from the Twenty-First Century | Alice Wong
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparentbut all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people. From Harriet McBryde Johnsons account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
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Scochrane26
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I need some recs for a Book BY a Disabled Author.

I looked up the tagged but library doesn‘t have it on audio, & I‘m not sure I want to do physical book. This is for my library‘s book challenge. Just haven‘t found one I‘m interested in.
No romances—I‘ve been reading a lot lately, no authors that have ADHD or autism.

19 likes6 comments
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shawnmooney
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https://youtu.be/kf4nKOac9fA?si=nlIyIySZEYiiFhJA

Disabled Authors Deserve, and Demand, More by Alice Wong: https://www.publishersweekly.com/pw/by-topic/columns-and-blogs/soapbox/article/9...

A Disability Activist is Asked to Change Her Speech by Boston University Her Response by Kristen Shahverdian and Samantha Lafrance: https://pen.org/a-disability-activist-is-asked-to-change-her-speech/

Gissy I need to watch that video, you are with Kendra👌 9mo
Chelsea.Poole Love Kendra! 9mo
30 likes2 comments
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RaeLovesToRead
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Pickpick

If you want to read about disability rights, this book compiles an eclectic range of essays from many different voices.

Very important reading.

⭐️⭐️⭐️⭐️

TieDyeDude Yes! Such important information. I felt the biggest takeaway is that people just want to be seen and heard. 1y
BekaReid Yes, this book was excellent. Some really powerful and thought-provoking essays were included in this collection. 1y
RaeLovesToRead @BekaReid I'm gonna check out some of the further reading in the back too, I think 1y
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RaeLovesToRead
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"Are we "worse off"? I don't think so. Not in any meaningful sense. There are too many variables. For those of us with congenital conditions, disability shapes all we are. Those disabled later in life adapt. We take constraints that no one would choose and build rich and satisfying lives within them. We enjoy pleasures other people enjoy and pleasures peculiarly our own. We have something the world needs." - Harriet McBryde Johnson

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K.Wielechowski
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Pickpick

Such a great book!
It‘s a collection of essays by people who have a wide range of disabilities and come from a wide range of backgrounds and races. The topics very from public transportation, healthcare, family, and everyday life with a disability.

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BekaReid
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Aimeesue This was such a great book. Lots to think about. 2y
BekaReid @Aimeesue yes, it's excellent! A.H. Reaume's is one of my favorite essays so far in this collection. 2y
15 likes2 comments
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Christine
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Thank you so very much for the lovely #JolabokaflodSwap gift, @AmandaBlaze ! I‘ve wanted to read this book for so long and figured I‘d need my own copy for highlighting - can‘t wait to start it! And 😋 to the chocolate in some of my favorite flavors. Thanks again.
Merry Christmas, all! ❤️🎄💚

AmandaBlaze You're welcome! Glad you enjoyed it. 2y
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Singout
Pickpick

An excellent compilation of 37 essays and reflections on disability, from a wide variety of experiences and looking at different issues: intersections with other oppressions, accessibility, mutual solidarity, incarceration, and being othered in many ways. There‘s a powerful emphasis that I appreciated as a disabled person on telling our stories and speaking our truths for one another.#Nonfiction2022 #Marvelous
#SheSaid

Riveted_Reader_Melissa I agree, I loved the variety and independence of each of these. I need more of that positive go vibe in my life. 2y
Singout It was too bad that they didn‘t have multiple readers. Hearing them all in the same voice detracted a bit from it. 2y
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Singout
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When I created #DisabledAndCute in 2017, I did so to capture a moment, a moment of trust in myself to keep choosing joy every single day. I wanted to celebrate how in this Black and disabled body I too deserved joy. The hashtag went viral and then global by the end of week two. When disabled people took to it to share their joys and stories I was floored…I might not feel joy every day, on some days I have to just exist, and that‘s OK too.

Anna40 I love that you created this 💕thanks for sharing! 2y
Singout You‘re welcome! It‘s a good article! 2y
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psalva
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Pickpick

This is a vital collection of essays and accounts which make up a cross section of many facets of the disability justice movement in the 21st century. It shows the diversity of the community and includes stories told be everyday people and those on the front lines in the disability justice movement. I respected that it included content warnings at the starts of essays which covered particularly sensitive topics.

psalva While I felt some pieces weren‘t as fully developed as others, I can‘t argue with the inclusion of any of the pieces. It‘s an excellent collection and one of the best reads this year. 2y
Reggie Great review! 2y
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Riveted_Reader_Melissa
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And I think I got a pretty good purple match here 😉

#Pantone2022
@Clwojick

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Riveted_Reader_Melissa
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Pickpick

I really really liked this collection, and I‘m so glad to whoever recommended this one to be read. I am disabled, and I learned so much more from this collection and from the immense amount of diversity of voices in this community then I‘ve heard before and found myself wishing I had connected with more voices in this community throughout my life and early years growing up and feeling alone.

#SheSaid

Aimeesue Great collection! Wong has a new memoir out, too 2y
56 likes1 comment
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Eggbeater
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Pickpick

3rd book read for the #20in4 readathon
@Andrew65

⭐⭐⭐⭐⭐

This book made me feel connected to a community that I've never really felt a part of before. I learned about my own internalized ableism, which I didn't even know was a thing, and my eyes have been opened more to the needs of others. This was really helpful in just liberation and claiming space. I will do better because of this book.

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Riveted_Reader_Melissa
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Hello #SheSaid! I don‘t know where the month went (yet again, this year is flying)… but I‘m glad to be spending it reading with you.

Such powerful essays this week and in this whole collection…. I think the disability adaptability relation to climate change and how nature adapts was a really interesting one.

How about you? What were highlights for you?

MallenNC I‘m very glad we read this one. Like most collections, some of the essays resonated more than others but it all gave me a lot to think about regarding disability rights. I‘ve been doing an accessibility certificate course for my job so this was well timed. Our instructor uses a quote “nothing for us without us” a lot and this book captures that theme well. 2y
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Riveted_Reader_Melissa @MallenNC That is a good quote 2y
Singout I am way behind: I‘ll keep going with this one next month because I don‘t have access to lady parts. All three of the first essays were good: I really liked the description of need for intersection of disability rights with black and feminist ones, the narrative about the differing treatment of the author and her aunt with the same condition in the second one, and Leah Lakshmi Piepzna-Samarasinha is always amazing. 2y
MallenNC @Singout I liked how up front intersectionality is in this collection too. 2y
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Riveted_Reader_Melissa
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Hello #SheSaid

I‘m really enjoying these essays, I hope everyone else is too. The one with the author, explaining how she adapted to still do what she wanted..I really got a lot from that one in particular.

Riveted_Reader_Melissa Crip-time was excellent too 2y
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MallenNC I am liking this one too. I liked the two you mentioned and also Lost Cause. Both for her story and the way she turned that insulting phrase into something empowering. 2y
vlwelser I'm totally failing to keep up with this one. Sorry. 2y
Riveted_Reader_Melissa @MallenNC The one about the disabled ride service was good too! Not the urination part, but otherwise I see some of those same issues with disabled transportation services here too. 2y
MallenNC @Riveted_Reader_Melissa That one was good. I was very anxious reading it wonder what was going to happen. This was overall a great section. 2y
ncsufoxes Rebecca Cokley is someone I admire. She has worked for the Obama administration. She has also been on the podcast Be an Antiracist which she discussed disability rights. I just finished About Us (disability stories from the New York Times) & they had a story about the subway too about how dysfunctional it is for a disabled person to be able to depend up especially when you work on NYC. How the elevators don‘t work half the time, so it‘s near 2y
ncsufoxes impossible to get around. I couldn‘t imagine if you were visiting & didn‘t know how badly the accessibility is. 2y
Riveted_Reader_Melissa @ncsufoxes the subway was built so long ago, long before the ADA…. unless it‘s changed since…. I remember some stops not even having elevators (stairs only) so you would need to go to the next stop and then backtrack by “walking”. Maybe not so horrible if you a motorized wheelchair (and a full power pack), but not great if you have a walking disability…. And not convenient or helpful either way. 2y
Riveted_Reader_Melissa “New York has lagged for years behind other major American cities in making its subway system accessible to people with disabilities: Just 126 of its 472 stations, or 27 percent, have elevators or ramps that make them fully accessible.” ⤵️ 2y
Riveted_Reader_Melissa “But on Wednesday, the Metropolitan Transportation Authority said it would add elevators and ramps to 95 percent of the subway‘s stations by 2055 as part of a settlement agreement in two class-action lawsuits over the issue” ⤵️ 2y
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Riveted_Reader_Melissa
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Hello #SheSaid

Sorry for the delayed start today!

Roughly halfway through this one already, how‘s everyone doing with it. I like the diversity we are getting with the different stories, but it also breaks it up more than a cohesive memoir.

MallenNC Being a collection of essays this is different from a memoir in its depth for sure. I like hearing from a variety of voices, and I like that there is a lot of intersectionality in this. I liked the essay about Selma Blair a lot, and the one by Haben Girma about guide dogs. I read her memoir a few years ago, and it was great. 2y
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psalva I would love to be added to this tag, if you don‘t mind. I have the book from my library but I am behind in starting it, unfortunately. Nonetheless, I‘d like to see what everyone is thinking about it. 2y
vlwelser I really like how diverse the essays are. I'm not totally finished with this week's selection but I am glad we are reading this. 2y
Riveted_Reader_Melissa @psalva I will add you, read when you can and just drop into the discussion as you finish a section. These posts are here and can be visited anytime. 2y
MilesnMelodies Can I be added? 2y
Riveted_Reader_Melissa @MilesnMelodies Yes you can, I‘ll add you to the tag list. Welcome 2y
ncsufoxes Really behind on my posts but I wanted to add to the conversation. Most people that are able bodied don‘t ever imagine what it‘s like to be disabled. But as we age and other medical events happen we are all at risk of being medically labeled as disabled. In America we sometimes blame people for their disabilities. Meaning we make things challenging as a society, like ADA compliance. As a society we like to hold up people that have “overcome” their 2y
ncsufoxes disability & say look that person can do it, why can‘t you. Now because of advocates like Alice Wong & countless others that are raising awareness & wanting their space & their stories heard more people are being heard. As a mom of an Autistic child I have become an advocate for him because I have realized I have to fight for his needs & rights. Schools, doctors, society, & so on aren‘t always understanding or helpful. Disabled people before me 2y
ncsufoxes have been able to pave the way so that I can learn from them & help my son as we are on this unexpected journey. 2y
Riveted_Reader_Melissa @ncsufoxes Speaking from personal experience here… but a Disabled Child‘s best advocate is their mom. My mom fought for me with doctors & teachers and by her example I slowly learned to fight for myself and recognize my own limits and be made less likely to feel I had to push myself past them to please society‘s norms and able bodied peoples expectations. Disabled children without the support network of family growing up are at such a ⤵️ 2y
Riveted_Reader_Melissa ↪️disadvantage because our society not only believes the you can “happy attitude” and “pull up by your bootstraps” out of anything, but also is terrible about listening to children and authentically believing them. I‘m very glad your son has you. (edited) 2y
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Singout

Sandy Ho: It wasn‘t until the early 1980s, for example, that the Chinese characters used to refer to people with disabilities changed from “canfei,” “useless,” to “canji,” “sickness”…Media professionals in China are now encouraged by the Chinese disability advocacy organization One Plus One to use the characters “cán zhàng” (“disabled and obstructed”) when reporting on disability issues.

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Riveted_Reader_Melissa
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Hello #SheSaid!

New month, new book!

Definitely some powerful mini-stories and essays in here.

What touched you the most?
For me it was Chasing a Cure, and Deaf while incarcerated

ravenlee I‘m out for this month, please - overwhelmed at the moment! 2y
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Riveted_Reader_Melissa @ravenlee Take care of you! Whatever is going on, I hope it gets better soon. 2y
ravenlee Thank you. It‘s all good stuff (and good reading!) - just a lot of it. 2y
Riveted_Reader_Melissa @ravenlee Then enjoy! And don‘t worry about it.😉 2y
vlwelser I'm not finished yet but this is surprisingly readable. I keep googling the authors to get additional background. 2y
MallenNC I‘m a little behind because of library due dates on other books but I like that this is an own voices collection. I will get caught up! 2y
ncsufoxes Deaf while in Prison is a shocking & infuriating story. I still can‘t believe that this happened in 2013. I still get so shocked to hear when people are denied basic services/needs like a sign language interpreter. People forget how much the ADA gets ignored. Ibrahim X. Kendi said in one of his podcasts, civil rights are as much about disability rights as disability rights are a civil rights. The two are intersecting & intertwined. 2y
ncsufoxes I always have to remind myself that the ADA was only passed in 1990, but it‘s also frustrating that 32 years later people are still fighting for basic rights. In every story or book I read about disability rights or stories there is a lot of individuality to each story but also a lot of similarities. There are overriding themes of people not being believed or blamed for their disability. If they try harder they can overcome it. As a society we 2y
ncsufoxes love to hear a success story of how someone overcame something but will push back when people ask for basic & legal rights (like access to voting booths, which is something that is still not fully accessible to most disabled people). I am happy that books like this continue to make their way into the world so that they can be discussed & we can learn from what others have experienced. 2y
psalva @ncsufoxes I just finished Part 1, and I totally agree with your point about the ADA being so recent. The essay about being deaf in prison is a great example of the point of Kendi‘s which you bring up, especially if you consider race disparities in incarceration rates and that 1 in 5 have a disability of some sort. 2y
psalva @ncsufoxes As you say, I am also glad to learn from what others have experienced. Also, @Riveted_Reader_Melissa I‘m grateful this book was brought to my attention from this read-along. I‘m very engaged by all of the essays so far, particularly the Common Cyborg, which, for one, gets at the disparity between tech which disabled people need and can‘t always access easily vs. tech which the general public uses and is often more easily accessible. 2y
37 likes13 comments
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LitsyEvents
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reposted for @Riveted_Reader_Melissa:

Hello #SheSaid! Next schedule is up for October! Put in your library holds and interlibrary loans!

original post is here:
https://www.litsy.com/web/post/2473988

#BuddyRead

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Riveted_Reader_Melissa
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Hello #SheSaid! Next schedule is up for October! Put in your library holds and interlibrary loans!

35 likes6 comments
review
jen_hayes7
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Pickpick

Difficult to read at times and at other moments incredibly uplifting. I think this book is one that everyone should read. Sharing a page that I strongly relate to. #readharder2022

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jen_hayes7
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Perfect way to spend a Sunday morning. #readharder2022

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jen_hayes7
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Really looking forward to this book. I‘m sure parts of it will be difficult to read (and appreciate the trigger warnings at the start of each piece). #readharder2022

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tenar
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Today I have 4 recommendations from my favorite books that fulfill quite a few challenges in April‘s #DisabilityReadathon!

•The group read is Disability Visibility, which contains some of the best disability writing I‘ve ever read.

•A poetry collection, from a deaf author: The Perseverance by Ray Antrobus. Explores biracial identity, a difficult father relationship, & deaf experiences. The most memorable contemporary poetry I‘ve read in a while.

tenar •By an autistic author, middle grade, and from the reading list: A Kind of Spark by Elle McNicoll. An autistic girl fights for a memorial commemorating women tried as witches in her town. Loved it.

•A book centered on invisible disability: The Sound of a Wild Snail Eating by Elisabeth Tova Bailey, on fatigue, snails, and meaning-making. A post-viral memoir, which I believe is an experience we should all take the time to understand these days.
3y
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Hooked_on_books
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Pickpick

I really appreciate this book for the voice it gives to people living with disabilities and the opportunity for others to hear those voices. I really like the mix here—each author‘s focus is a little different, which keeps this interesting and gives it good emotional balance. This is really worth your time.

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Auntynanny
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Pickpick

This anthology was so interesting and informative! I've never read an entire collection by disabled writers before. I look forward to reading more from all of the authors in this book!

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Andrea313
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I've been very slowly reading this collection and am not quite ready to write a full review; but I am definitely ready to shout from the rooftops how important this book is! This blurb from the publisher nails it: "This anthology gives a glimpse of the vast richness and complexity of the disabled experience... It invites readers to question their own assumptions and understandings."
#ConflictedWorlds #Disability
@Eggs @Alwaysbeenaloverofbooks

ChaoticMissAdventures This book is so important and needed. And just incredibly good to boot. 💜 3y
Eggs Perfect 👌🏼📚👏🏻 3y
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Theexplorer
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“Many nondisabled people attribute a degree of brokenness to disability; it rises from the medicalization of our body minds. To be disabled is, in this world, to experience a problem of body and/or mind so severe that it distinguishes a disabled person from a nondisabled person”.

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WorldsOkayestStepMom
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Pickpick

I read for several hours today and finished this anthology. In some of the essays, I cried as I read them. In others, I felt seen and understood. This is an incredible anthology for all people who claim to be advocates of anything because you can't forget about the disabled community in your advocacy.

#JoysOfJune #Readathon

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WorldsOkayestStepMom
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This is my first readathon, and I'm so glad I found out in time to participate from the beginning! My goals:

1. Finish tagged book.
2. Mail my dad's father's day gift (it's a book).
3. Read a book with lgbtq representation.

#JoysOfJune @Andrew65

Andrew65 Great to have you with us, good luck 😊👍 4y
skewermann @WorldsOkayestStepMom if you get a chance try my prescient, paint-peeling parody of "Fire and Fury"... "Dire and Puny", blowing the lid on the Chump administration ????https://www.amazon.com/dp/B081S5JLTX Love Martha Skewermann, Founder, Global Allegorical Journalism Foundation ? #satire ? #Allegory ? #Orwell cc @Andrew65 Reviews: https://twitter.com/skewermann/status/1301793540624670722?s=19 4y
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kspenmoll
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NeedsMoreBooks Reading this now ☺️ 4y
Eggs Well done 👍🏼📚✅ 4y
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effani
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Pickpick

This is an important and well-done collection of essays. It's a little uneven because most of the essays are reprinted from other sources, but the best essays really shine. My favorites were “Unspeakable Conversations“ by Harriet McBryde Johnson, “So. Not. Broken“ by Alice Sheppard, and “Six Ways of Looking at Crip Time“ by Ellen Samuels.

A great way to learn more about disability justice. Recommended.

effani #ReadHarder2021: An #OwnVoices book about disability. 4y
Megabooks Great review! 4y
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Megabooks
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Pickpick

This is a #reread for me ahead of the Feminist Book Club discussion with Alice Wong. I highly recommend this essay collection to get a broad perspective on many disabilities.

I‘m disabled, and part of my disability is not being able to supinate my hands well. I can‘t do that fancy two-handed thumb typing on my phone, so my phone is on my Flippy now while I hunt and peck this paragraph. I can‘t hold books open, so this has been a godsend for ⬇️

Megabooks ⬆️ being able to read physical books such as this one. Sometimes I think about the accommodations I make in my life, and some of them I‘ve been doing for so long I don‘t notice I‘m “different” until someone (like my dad with my driving) points it out. (I can‘t keep steady pressure on the gas pedal due to nerve damage on my leg. I don‘t even notice the minor fluctuations in speed anymore as I press and release. I think my dad is picky! 😂) 4y
KathyWheeler Do you think this book would be useful in a university library? 4y
Megabooks @KathyWheeler I haven‘t been in a non-science university library in years, but my gut is yes. These are all first-person essays. It is not a rigorous social science book, but it is a collection that is part of Alice‘s larger disability visibility project, which can be found as a website and as a podcast. 4y
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KathyWheeler @Megabooks Thank you. I am in charge of collection development in our library. Lately, like a lot of libraries, we‘ve been trying to add more diverse titles to our collections. One area where we are severely lacking is disability, so every time a see a title that might work, I try to check it out. 4y
Cinfhen Wonderful review, a book I‘m curious about thanks to your review 💜 4y
Kalalalatja Great review! Does the book focus mainly on physical disabilities, or are mental disabilities included, too? 4y
Megabooks @Cinfhen 💜💜💜 4y
Megabooks @Kalalalatja It is more about physical disabilities. There are some people with mental disabilities (mainly bipolar and autism) or people who sit at the intersection of both physical and mental disabilities, though. I know you‘re a counselor. As far as essay collections, even though my mental illness is different than the author, I found this helpful. 4y
AutumnRLS I am also disabled. I had colon cancer in 2007 that left me with a bevy of physical ailments that are invisible to the outside world. I'm sure there are people in my community that think I'm "gaming the system." The whole situation is depressing and fills me with anxiety because in our culture, if you can't work, you're viewed as less than. 4y
Megabooks @AutumnRLS I am sorry about that. I can completely relate to the invisible disability problem. So many people in my community don‘t get how exhausting fighting health problems for 24 years now can be. (I‘m 41, and my problems started at 17.) So much of my identity was tied to work before I had to quit 3 years ago. I‘d like to go back to doing something, but in the wake of recent surgeries, my ability to do anything in the workforce has gone away. 4y
Megabooks @AutumnRLS and I can relate to the anxiety and feeling judged as well. It makes an already small world even smaller. 💕💕 4y
BookwormM Another Invisible Illness here Ankylosing Spondylitis for me with all the associated eye problems. 4y
Megabooks @BookwormM I‘m sorry. It‘s so hard to “look normal” but not feel normal and often be judged about it. I‘m glad we‘re supporting each other here. 💕 4y
Kalalalatja I read Schizophrenias last year, and found it well written, but too distanced or academic, if that makes sense? I found it hard to relate to for the most part, unfortunately. But I‘m always looking for books to educate me, and even though I‘m a psychologist, I have young people with physical disabilities too, so I‘ll have to find this book 👍 4y
Megabooks @Kalalalatja yes for sure! As with any multiple perspective collection, some you will enjoy/find useful more than others, but on the all, it is very well done. 4y
sblbooks Thanks for sharing. I have cerebral palsy, so would be interesting to me. 4y
Megabooks @sblbooks I hope it‘s helpful for you! 4y
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review
Dalaine
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Pickpick

This was a great introduction to disability culture and the disability rights movement. Honestly, I have been pretty ignorant about the many issues affecting disabled people's access to things I take for granted in my everyday life.
The collection of essays and stories in this book introduced me to inspiring and exceptional humans. I really recommend this for anyone trying to educate themselves on this underrepresented issue.

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HeatherBookNerd
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Pickpick

A carefully curated list of essays by people who live with a wide range of disabilities, both visible and invisible. The authors are a diverse bunch, representing a variety of ethnicities, gender identities, and social economic backgrounds. The essays expound upon just about everything - parenting, work environments, sexuality, civil rights, mental health, creating art, and more - all through the lens of disability. Definitely recommend.

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BookmarkTavern
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#NewBooks

I may get a little frustrated with my local bookstore not emailing to let me know that my books are back ordered and wouldn‘t be delivered until a month later, but I‘m still going to give them my money. 😂

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Hestapleton
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Pickpick

Apparently I am on a reading roll today! This book challenged the way I approach understanding disability. I‘m an able-bodied person with a severely disabled sister. While this collection does not speak for her, it gives me a way into some thoughts she might have. And empowers me to fight for her harder.

CoverToCoverGirl I love your review! 😁 4y
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Cazxxx
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This is such an important book for everyone to read. I‘ve just been reading a little bit at a time as I want to understand fully the experiences of all the writers

kaysworld1 It is so hard to get this book in my area. Is it good? 4y
Cazxxx @kaysworld1 so far it‘s really good. I got my copy from eBay 4y
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LiteraryinPA
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Pickpick

What a great read. This collection would be a great starting point for anyone wanting to deepen their understanding of the lived experiences of people with disabilities. At every turn the writers are pushing back on overused tropes of inspiration porn and the ableist assumption of praying for a cure. I am glad I read this and look forward to finding more in this field.

Hooked_on_books I‘m not usually big on celebrity memoir, but Michael J Fox does an amazing job of showing what it‘s like to live with Parkinson‘s in his latest book. The things so many of us take for granted, he has to carefully plan out so he doesn‘t get injured or hurt someone else. And it will only get worse for him. But he‘s very matter of fact about it. It really made me think. 4y
tenar I loved this, too, and also wanted more! Right now I‘m in the middle of a collection of shorter essays, excellent so far, and including a great piece by Alice Wong: 4y
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TheAromaofBooks Great progress!! 4y
LiteraryinPA @tenar Thanks for that suggestion! 4y
Kempii Thanks for the recommendation. I look forward to checking it out. This is definitely an area where I know I can learn more. 4y
jmofo Alice Wong‘s online presence has taught me much. I am looking forward to reading this. 4y
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review
sarahlandis
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Pickpick

This collection of essays, stories, and poems from writers of all classes, races, genders, is so important. It illuminates the achievements in recent years of more visibility and justice, and highlights how much work is left until the “future is accessible”. Fun stories of clothing and guide dogs to serious accounts of neglect and abuse turned this read into an emotional roller coaster. I recommend to any one looking to expand their inclusivity

LiteraryinPA I read this last month too. It introduced me to a lot of new-to-me voices within the Disability community. 4y
sarahlandis @LiteraryinLititz yes!!! That‘s one of the main reasons I loved this book- I looked up as many people as I could to read more about them and was introduced to so many new things and fantastic people 4y
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pyjamaviking
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sharmeen_sifar
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Pickpick

Such a amazing variety of voices. Thanks so much for this book. I hope in Singapore, where I'm from, someone collects such stories. Sg is still very provincial when it comes to disability justice.

tenar Welcome to Litsy! 👋🏻 I loved this collection, too, and would love to read more like it from Singapore and around the world! 4y
Smarkies Welcome to Litsy! Yes, in this part of the world we are provincial when it comes to topics as this. 😓😓 3y
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Allietaylor16
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February will be my first month participating in #bookspin! I‘m excited about my list!

Librariana Yay! Congrats on joining in and on this upcoming month being your first! 4y
TheAromaofBooks Yay!! Glad to have you along!! 4y
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tenar
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The #fivefingerbookchallenge seemed like a fun way to chat up books I haven‘t yet mentioned on Litsy.

👍🏻 Book I loved: The Three Cornered World, AKA Kusamakura. Natsume Soseki has been my favorite author for years, and this is tied with The Gate as my favorite of his books. I hope to reread both this year.
☝🏻 Book I recommend: Disability Visibility. I want the whole world to read this collection!
(Continued in comments.)

tenar 🖕🏻 Book I disliked: The Dispossessed. I lived & breathed for the first three Le Guin novels I read, then I bailed on this one! Dare I try again?
💍 Character I‘d marry: Can I pick a real person? Reading her letters in 84, Charing Cross Road, I was smitten with Helene Hanff‘s generosity, humor, and passion for books.
🤙🏻 Book I pinky-promise to read: Oranges Are Not the Only Fruit. I have this copy on display but haven‘t even read it!
(edited) 4y
LeahBergen Hanff!! 💗💗 4y
meghathecloud Which one of Soseki's works would you say will be a good one to start with? I'm considering reading Kokoro soon. 4y
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tenar @meghathecloud I think it‘d be hard to start wrong with Soseki, so you have choices to suit your mood! Kokoro is dark and deeply Japanese, Sanshiro is a lighter ‘coming of age‘, Kusamakura is near-plotless contemplation on art, and I Am a Cat vol.1 is social satire from a cat‘s POV! I started with Kokoro like most readers, but I fell in love when I read Sanshiro next. Delightfully, all are well under 300 pages. I‘m excited for you! 4y
meghathecloud Thank you! I think I'll go with either Kokoro or I Am a Cat as it sounds right up my alley. 4y
tenar @meghathecloud Sure thing! I Am a Cat was first a short story, then serialized, so each chapter is rather self-contained and easy to dip in and out of, whereas I think I read Kokoro nearly straight through. Hope you enjoy! 4y
tenar @LeahBergen Such a charmer! Have you read any of her other work? I was looking next to try 4y
LeahBergen Oh, yes! Definitely read that one. I also really enjoyed 4y
tenar @LeahBergen I hadn‘t even seen that one, delightful! Like a Charing Cross trilogy. Thank you, I can‘t wait to hear more from Hanff! 4y
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brandierickson
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Pickpick

First book of the year and it was a doozy! I am trying to be more involved in activism this year and this book opened my eyes to a completely new area. Definitely recommend this book.

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ValerieAndBooks
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Pickpick

We have come a long way since I was born Deaf 55 years ago; but still have a long way to go , as this series of essays will assert. Far from being “inspiration porn”, these are raw testimonies (but not “poor-me” either) by people across the disability spectrum & some also are POC and/or LBGT groups. Several essays start w/ content notes for TWs.

And yes those are bits and pieces of my aids over the years (newest at top). Several are broken 👇

ValerieAndBooks Cont‘ because insurance tends not to cover hearing aids and I‘d literally have to hold them together with tape. Even if partially covered, they are very expensive. One essay in here is about people having to buy used prosthetics on eBay because that‘s the only way they can afford them. 4y
katy4peas Healthcare and disability care and equity is a basic human right around the world. Things need to change to make this a reality. It‘s a part of caring for each other. 4y
LeahBergen I‘m shocked that hearing aids aren‘t covered by insurance! 4y
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TrishB My sister has hearing aids, free on the NHS. Why I love the NHS and feel upset that you have to use tape for something so essential. 4y
ValerieAndBooks @katy4peas That is so true. It shouldn‘t come down to how good your insurance is (and that can change depending on circumstances). 4y
ValerieAndBooks @LeahBergen some do better coverage than others and it‘s considered “durable medical goods” like wheelchairs etc which they don‘t like to cover 🤷🏻‍♀️ 4y
ValerieAndBooks @TrishB I‘m glad for your sister! I‘ve almost always worn just one although both ears are equally profoundly deaf. Because of the cost, and I‘m actually one who has relatively very good health insurance (via my husband‘s job). It‘s crazy. 4y
obviateit @ValerieAndBooks thank you for sharing! I have a friend who is HOH and fresh out of college, who recently had a gofundme set up for her as a surprise so she could get new hearing aids. Another friend has 3 deaf/HOH kids (my kids‘ friends), and they need new(or repaired?) cochlear implants, which insurance denied because they “aren‘t necessary”. Healthcare in the US is a joke. 😔 4y
ValerieAndBooks @obviateit these stories are all too familiar and it‘s a shame😢. That reminds me of many years ago when a co-worker won some money (long story about how she won and why she shared) and divvied it up among us in the lab. My other co-workers used theirs for fun stuff, but I used mine to buy a new hearing aid! (edited) 4y
obviateit @ValerieAndBooks 😢💔 I hate that it‘s so common. 4y
TieDyeDude I really enjoyed this collection for the most part. You might also get more out Volume Control than I did. There is a client in the group home I work at (for adults with developmental disabilities) whose hearing aids keeps falling out, and may be broken, but a repair or replacement wouldn't be covered by insurance. It's disgusting what they get away with... 4y
ValerieAndBooks @TieDyeDude I‘m sorry about your client‘s aids falling out 😢. Is it partly due to wearing masks? I have to wear masks with ties because elastic loops make them fall out especially when removing them. Are there local social service agencies and/or charities ie Sertoma that could help cover the cost of aids and/or fixing them? 4y
Suet624 So many things are depressing about our insurance policies. I‘m sorry. 4y
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nelehelen
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Pickpick

One of the most important books I read this year. Since disability does not discriminate, this anthology is inherently diverse in both the content and its writers. As I read through these essays, I became aware of my own “unconscious privilege” as well as the pervasive ableism and inclination for inspiration porn we as an able-bodied society carry. I highly recommend. Perfect for #NonfictionNovember.

Megabooks I agree. I devoured this the week it came out. My parents and I are all disabled for different reasons. There is so much diversity in experiences and reactions to them, by the person, their families, and anyone they encounter. 4y
nelehelen @Megabooks yes! It was so good. And just so eye-opening for me. A book that should be read by all! 4y
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TieDyeDude
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Pickpick

I learned a lot of new things while also getting a first-person perspectives on things I had read about previously. So many important stories, and so many of them are simply asking for people to listen. Highly recommended.

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TieDyeDude
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In talking about mainstream dismissal of marginalized communities during big natural disasters, Berne's essay explains why a capitalist society values certain lives over others.

Clare-Dragonfly Wow, that really ties into a couple of things I listened to/thought about recently. I should read this. 4y
TieDyeDude It's a solid collection of writings. I'm learning a lot and getting some great first-person perspectives of things I've read about previously. 4y
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ValerieAndBooks
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Yesterday was #IndigenousPeoplesDay. We should be aware of injustices towards them much more often than just a couple days a year (the other being Thanksgiving).

Here Deerinwater explains why other terminology (i.e. Native American) is not good. Although this essay collection focuses on disability, she uses her essay to show the tragic lack of acceptable medical care towards Indigenous people here in the US.

obviateit 👏🏼👏🏼👏🏼 4y
MicheleinPhilly That‘s very interesting. Yesterday I participated in a forum that my employer put on with the CEO of UMOS. He and the Latina partner that led the discussion both talked about how much they loathe the term “Latinx.” 4y
ValerieAndBooks @MicheleinPhilly Interesting to consider, as South America and Mexico (and parts of what‘s now the US) had the Spanish “invade”. So it does make sense! What term(s) do they prefer? 4y
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MicheleinPhilly Hispanic or Latino/a. They didn‘t get too much into the reasoning behind it as that wasn‘t the topic of discussion but the partner made the point that you won‘t really hear an Hispanic or Latino/a person refer to themselves as Latinx. She provided some links that I have yet to read. 😬 I will report back! ☺️ 4y
ValerieAndBooks @MicheleinPhilly Thanks Michele. Let me know what you glean. I thought Latinx was intended to be gender neutral/fluid ? Hmm. 4y
MicheleinPhilly We are having a Zoom discussion with the author of this book right now and I‘ve posed the question to her. I will report back ASAP! 4y
MicheleinPhilly Blerg. The time ran over and they didn‘t get to answer my question. BUT I have been reading some of the articles that were circulated last week. Essentially everyone has a different opinion on it but the most common “complaints” I‘ve seen is that it is a term that was developed within the confines of academia; it was developed by non-native speakers; it ignores the inherently gendered nature of the Spanish language; 👇🏼 4y
MicheleinPhilly It makes a mockery of the Spanish language because it is unpronounceable in Spanish as it is written; it negates the individuals/groups that refer to themselves as Hispanic or Chicano or Afro-Latino, etc. The list goes on and on. Then you have the generational divide whereby the “hey you kids, get off my lawn” set think it‘s a silly term to make young‘uns feel empowered and woke. 4y
ValerieAndBooks @MicheleinPhilly thank you for taking the time to report back! Hope the zoom discussion was still a good one anyway. Seems like every group has disagreements on preferred terminology. Like Deaf versus hearing impaired, etc. 4y
MicheleinPhilly Exactly. I mean, I have strong opinions about the terminology used to refer to the LGBTQ+ community. 🤷🏻‍♀️ The Zoom discussion was really fascinating. I feel very fortunate to work for an employer that presents such interesting offerings. 4y
ValerieAndBooks @MicheleinPhilly in general, it can be hard to know what terms are acceptable. Or what used not to be but are okay now. My daughter and her girlfriend are fine with “queer” but I still remember when it was a very insulting word. And that‘s great you have a good employer! 4y
MicheleinPhilly Yes! We‘re having a discussion with Ibram Kendi next week and I‘m so excited! The terminology issue is so complicated. I‘m not offended by the word “queer” but I would never use it to describe myself and I would likely side eye if someone referred to me specifically with that term. 🤷🏻‍♀️ It‘s all so complicated. 4y
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